We've invested more than $20 million to advance knowledge of the treatment of bleeding disorders.
Research Projects

We've invested more than $20 million to advance knowledge of the treatment of bleeding disorders.

Fund Your Research

From basic science to clinical care, our research programs focus on finding better treatments and improving care for all bleeding disorders.

From basic science to clinical care, our research programs focus on finding better treatments and improving care for all bleeding disorders.

Add Your Voice

Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys offering researchers a 360-degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their non-affected family members (parents, spouses, grandparents, and siblings), it provides all the opportunity to participate in patient-reported outcomes research.

1279
Total Enrollment
75%
963 are Male
24%
316 are Female
National Research Blueprint
National Research Blueprint

A world without bleeding disorders starts with research.

Thank you to our 2021 Partners in Research

Bayer BioMarin Sanofi Genzyme
Takeda Hemophilia Alliance