NHF’s Medical and Scientific Advisory Council (MASAC) issues recommendations and advisories on treatment, research, and other general health concerns for the bleeding disorders community. MASAC is composed of medical professionals, government agencies, and patients with a wide range of expertise on bleeding disorders, blood safety, and infectious diseases. MASAC guidelines cover a wide range of medical issues, from prevention and treatment to infectious disease complications and women with bleeding disorders. While these documents provide a wealth of information for medical providers, the content is also important for consumers.
MASAC For You (MFY) publications aims to distill the important medical information found in the MASAC Guidelines, into concise, accessible language directed toward a consumer audience in both English and Spanish languages. MFY publications are designed to be shared with medical providers, schools, caregivers, and family members. These “go-to” documents empower the community by having quick access to reliable, expert information to facilitate shared decision-making with healthcare providers.
Each of the MFY publications provides links to the original MASAC guidelines which can be used as companion documents for providers who may need and want more detailed information.
A trip to the Emergency Department (ED) can be scary and stressful. MASAC For You – Guidelines for Emergency Department Management of Hemophilia and Other Bleeding Disorders, provides specific steps to prepare for an emergency department visit and includes important information to help you have productive conversations with ED staff. The document provides high level treatment guidelines that patients can share with providers and includes links to other MASAC guidelines that deliver more detailed information on specific bleeding disorders and their patient populations.