The NHF board of directors works with the president and CEO of the organization to fundraise, oversee strategic planning, and elevate the mission of NHF.

Ali Haidar

Ali Haidar

NYLI Representative


,

Ali Haidar currently is a Junior at Wayne State University earning a bachelor’s degree in Accounting and Information Systems Management. He is focused on accounting with a technical background. When Ali was one year old, he was diagnosed with Factor XIII (13) deficiency when his little sister was born, who also had it. Ali has been involved with the hemophilia community since he was 13 years old. Ever since, he has done more every year, going to conferences, talking to others, and volunteering. In his spare time, Ali enjoys designing and building gaming computers. Through NYLI, Ali hopes to better the bleeding disorders community as much as possible!

Brian Andrew

Brian Andrew


Milwaukee, Wisconsin

As Chief Investment Officer, Brian leads Johnson Financial Group's investment strategy to provide consistent, actionable investment solutions for clients. With more than 26 years of experience in the financial services industry, Brian has led several investment management and advisory organizations, managing wealth and institutional portfolio assets. He has also managed portfolio assets for individuals and non-profit organizations including health care, senior living, foundation and university endowments. In addition, Brian has led research groups conducting money manager research and due diligence. Brian holds a BS in Business and Finance from the University of Minnesota in addition to the CFA® designation. Brian is a member of the Wisconsin Healthcare Financial Management Association and Chair of the National Hemophilia Foundation. Brian currently serves on the Advisory Board for the University of Wisconsin - Milwaukee (UWM), College of Health and Science. Additionally, Brian is an adjunct professor for IE University's graduate finance program teaching portfolio management. Brian has also served as an advisory board member for the Marquette University Applied Investment Management program, as a director for a community development authority and school commission member for St. Charles School and President and Treasurer of Great Lakes Hemophilia Foundation.

Derick Stace-Naughton

Derick Stace-Naughton


Los Angeles, California

Derick serves as Senior Vice President, Strategy and Business Operations, at Quixote Studios, a private equity-backed entertainment services company. Derick joined Quixote Studios from Production Resource Group, where he served as Chief Operating Officer of the firm's entertainment business. Derick has also worked for Dr. Condoleezza Rice and for the Boston Consulting Group, where he was a Consultant in the Media and Technology practice.

Derick earned an MBA from Stanford University, an MSc from the University of Ulster, and a BA from Georgetown University.  

James Heer

James Heer


Minnetonka, Minnesota

James Heer is the President and CEO for the Workers' Compensation Reinsurance Association, a non-profit association providing financial protection to insurers and self-insurers against catastrophic losses from work injuries. He is an actuary, receiving his fellowship through the Casualty Actuarial Society, with over 20 years of experience in risk analysis, insurance, accounting, finance and investments. James and his wife volunteers with local nonprofits to plan and run fundraising events. Although his family is not directly affected by a bleeding disorder, he became involved through a close friend with ties to the community. James lives in the Twin Cities area of Minnesota with his wife and three children.

John Faria

John Faria


Edmond, Oklahoma

John M Faria is an executive leader currently in the software industry. John holds his undergraduate degree from the University of Massachusetts, Dartmouth in IO psychology with a minor in Literature and Criticism. In addition, He holds an MBA with concentrations in international business and management from Assumption College. His family includes Stephanie, his devoted wife of over ten years, Isabella, his beautiful ten-year-old daughter, and Elijah, the rambunctious three-year-old who all reside in Edmond, Oklahoma.

John's career extends for twenty years and includes enterprise technology solutions, logistics engineering, organizational change management, and corporate leadership. He continues to work as a Director of Customer Success at Descartes Systems Group, a global leader in logistics software solutions.  His passion as an avid technologist enables him to tackle world-class challenges that improve and grow top companies all around the world. In addition, he is involved in many activities among the bleeding disorder community including volunteerism, fund raising, policy/issue advocacy and community education. Most recently, John was team captain of the Oklahoma Hemophilia Foundation's Men's fitness challenge with our team placing second in the overall competition.

John has been fortunate to take advantage of many valuable experiences as part of the bleeding disorders community.  Many of the early experience with the non-profit organizations that assist individuals with bleeding disorders enabled John to become the man he is today. These organizations include NHF's Chapter communities as well as private foundations that aid and enable positive experiences to young people with bleeding disorders.  He looks forward to continuing to enable current and future organizations to improve and grow as the community evolves into the future. Our chapter community continues to thrive, overcoming adversity each and every day. 

John continues to advocate within the community, a proponent of the philosophy that the nature of living with hemophilia offers a unique perspective, one that is committed to positive living. He looks forward to continuing to be an active contributor in the hemophilia community, both as a grassroots patron as well as an advocate for broader challenges that impact the entire bleeding disorders community.

Kai Brown

Kai Brown


San Francisco, California

Kai Brown serves as Senior Director, Worldwide Commercial in the Cardiovascular franchise at Bristol Myers Squibb. Kai started her career as a Staff Biologist at Merck before taking on various roles of increasing scope and responsibility within the areas of Business Development, Pipeline Strategy, and Marketing at several well-known Bay Area biotech companies. She brings a deep passion for science, research, and serving communities.

Kai earned an MBA from Stanford University Graduate School of Business, Master’s in Biotechnology from Columbia University Graduate School of Arts and Sciences, and a Bachelor’s from University of Maryland Baltimore County.

Lynne Capretto

Lynne Capretto

Board Secretary


Portland, Oregon

Lynne Capretto has more than 40 years of experience in nonprofit management and fundraising. Highlights of her career include working for two hunger-relief organizations, serving as Associate Executive Director of a United Way, teaching at a community college, and working for several anti-poverty agencies, including Head Start. She served as the Executive Director of the Northern Ohio Hemophilia Foundation for the final ten years of her career. Lynne participated on a variety of national task forces within the bleeding disorders community, such as First Step, the precursor to Steps for Living, the NHF annual meeting planning group, and the committee to establish NHF chapter standards. She was also a member of the Board of Directors of the World Federation of Hemophilia-USA.

Lynne earned B.A. and M.A. degrees in Sociology from Kent State University and completed two years of doctoral studies at Case Western Reserve University. She was awarded the Key to the City of Cleveland by Mayor Michael R. White in 2001 for her contributions to the hunger community and the Humanitarian of the Year from the National Hemophilia Foundation in 2007.

Eileen San Juan

Maria Eileen San Juan


Freehold, New Jersey

Eileen San Juan has been working as a physical therapist and director of rehabilitation in various clinical settings for over 20 years and owns Count On ME Therapy and Wellness Services, LLC. She has worked in the field of rare blood conditions for the past 15 years at the Comprehensive Hemophilia Treatment Center at the Mount Sinai Icahn School of Medicine in New York, New York, and previously at The Blood Research Institute of Saint Michael's Medical Center in Newark, New Jersey.  Within this community, Eileen has also served as a committee chairperson for the Region II Physical Therapy Task Force and as a member in the National Hemophilia Foundation's Physical Therapy Working Group. 

She has offered several health, wellness, and holistic lectures, articles, and interactive courses for hospitals, NYCHC, NHF, HANY, HFA, and HANJ. 

Eileen holds a Master of Science degree in physical therapy from The University of Medicine and Dentistry of New Jersey, a Bachelor of Science degree in psychology from Kean University, and certifications in massage therapy and Reiki. 

Eileen firmly believes that healthcare is a calling, and her mission is to serve and educate the community by making each person's treatment as unique and individualized as that person and utilize the comprehensive team approach to do so. 

Eileen enjoys practicing yoga, finding places in NJ "off the beaten path" to walk or run, spending time with her family and dog, singing as a cantor in her place of worship and, of course, working in the rare blood community for the last 15 years, a place she has called home. 

Patrick Mancini

Patrick Mancini


Shrewsbury, Massachusetts

Patrick Mancini is a philanthropist, artist and Healthcare Information Technology Solution Architect with International Business Machines (IBM). Mr. Mancini served nearly twenty years as board member, Chairman and President of New England Hemophilia Association (NEHA) before joining the NHF board of directors in 2019. Mr. Mancini has used art to educate and fundraise at a local and national level for Hemophilia as well as other philanthropic organizations such as The Hole in the Wall Gang Camp. Mr. Mancini brings his solution architecture expertise relevant drug discovery, real world evidence, cognitive computing and artificial intelligence to develop and innovate on new and disruptive technologies for life sciences, payors, providers and hospitals worldwide.

Paulette Bryant

Paulette Bryant, MD


Charlotte, North Carolina

Paulette Bryant, MD is a Pediatric Hematologist–Oncologist at the St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital in Charlotte, NC.  She serves as the Physician Lead of the Pediatric Hematology Division and is the Pediatric Medical Director of the Hemophilia Treatment Center.  She is the local Principal Investigator for the St. Jude Sickle Cell Clinical Research and Intervention study (SCCRIP) and the PCORI Sickle Cell Trevor Thompson Sickle Cell Grant (ST3P-UP).   Her clinical interests include bleeding and thrombotic disorders and sickle cell disease.

She attended Harvard Medical School after completing her studies at Hampton University in Hampton Virginia. She completed her pediatric training at Naval Hospital Oakland (Oakland, CA) and her pediatric hematology and oncology training at Children’s Hospital of Stanford (Palo Alto, CA) Dr. Bryant is a retired Navy Captain and served as Chair of Pediatric Hematology-Oncology at the Naval Medical Center Portsmouth, Virginia.

Dr. Bryant is certified by the American Board of Pediatrics in pediatric hematology/oncology and general pediatrics.  She is actively working to improve the health of the Charlotte community and has served on several local boards including Project Life Movement, Ronald McDonald House of Charlotte, and the Girls Scouts, Hornet’s Nest Council.  She is a recipient of the United States Navy Meritorious Service Award, the Girl Scouts Women of Distinction Award and the Charlotte Business Journal Physician of the Year Award. Throughout her years in Charlotte, she has repeatedly received the Charlotte Magazine Top Doctors recognition.

Ryan Griffith

Ryan Griffith

Board Treasurer


Charlotte, North Carolina

Ryan Griffith is the co-founder and owner operator of Social Pet Hotel & Daycare, Carolina Socials Catering, and Marble Slab Creamery franchises in North and South Carolina.  With more than 20 years of entrepreneurial experience, Ryan oversees business development, strategic planning, operations, project management, and creating and implementation of marketing initiatives.  Ryan holds an undergraduate degree in business management from the University of Tennessee.  He has extensive experience in fundraising and volunteering with various organizations in his local community. Ryan lives in Charlotte, NC, with his son, Kai, who has Severe Hemophilia A with an inhibitor.

Scott Martin

Scott Martin

Board Vice Chair


Houston, Texas

Scott Martin is a private investor based in Houston, Texas. He has a son with severe hemophilia and has worked to improve the lives of people with bleeding disorders by supporting the Lone Star Chapter. In addition, he co-founded Inspiration Biopharmaceutical, a factor manufacturing company that initiated two products that today are owned and marketed by Shire and Aptevo. Scott was also co-founder of Martin Midstream Partners (NASDAQ; MMLP) and serves on several non-profit and profit boards.

Scott Miller

Scott Miller

NHF Board of Directors


Erie, Pennsylvania

Scott is currently the Dean of the School of Business at Edinboro University. He has held numerous leadership positions including the Chair of the Erie Metropolitan Transit Authority. He also is a practicing attorney focusing on tax, estate, and complex business transactions. Scott's observations are that NHF does a good job in dealing with new families, and helping guide our youth through the challenges of living with Hemophilia. He believes that as our population ages, we can do a better job at offering programs and guidance relating to the numerous new challenges that one faces with age. These included, but were not limited to, topics like health insurance, retirement planning, and financial concerns associated with managing their health and wellbeing. Scott has extensive leadership and board experience. He held many leadership positions on the Board of the Western Pennsylvania Chapter since 1997.

Steven Pipe

Steven Pipe, MD

Chair, MASAC


Ann Arbor, Michigan

Steven Pipe, MD is Professor of Pediatrics and Pathology, Laurence A. Boxer Research Professor of Pediatrics and Communicable Diseases, Pediatric Medical Director Hemophilia and Coagulation Disorders Program and Director of the Special Coagulation Laboratory at the University of Michigan. His clinical interests include bleeding and thrombotic disorders and congenital vascular anomalies. Dr. Pipe also directs a basic research lab investigating coagulation factor VIII and the molecular mechanisms of hemophilia A.

Dr. Pipe completed his undergraduate medical training at the University of Toronto and his pediatric training at McMaster University in Hamilton, Ontario. He completed his pediatric hematology and oncology training at the University of Michigan, where he was also a fellow of the Pediatric Scientist Development Program.

Dr. Pipe is certified by the American Board of Pediatrics in pediatric hematology/oncology. He was awarded a Young Investigator Award from both the American Society of Pediatric Hematology and Oncology and the International Society on Thrombosis and Haemostasis. He received a Faculty Scholar Award from the American Society of Hematology. He was a recipient of the National Hemophilia Foundation's (NHF) Career Development Award. He served on the board of directors for the Hemostasis and Thrombosis Research Society. Dr. Pipe is the current chair of NHF's Medical and Scientific Advisory Council and was the immediate past chair of the American Thrombosis and Hemostasis Network board of directors.

Susan Hartmann

Susan Hartmann


Annapolis, Maryland

Susan serves as Program Director at Enterprise Community Partners in Washington, DC, a national non-profit leader in community development and affordable housing. She has extensive experience in public sector consulting, community engagement, economic development and urban planning. She began her career in education in 1996, and has teaching and program management experience in secondary, post-secondary and higher education. Her husband has severe hemophilia A and is a long-time HIV survivor. Susan is a national advocate for HIV education, reproductive rights and an end to HIV stigma. She has been featured in The Washington Post, CNN, Babycenter.com, HemAware Magazine and Positively Negative: Love Pregnancy and Science's Surprising Victory Over HIV (Boerner, 2014)

In 2015 she began volunteering with the National Hemophilia Foundation Bleeding Disorders Conference Planning Committee where she helped develop and launch the conference's Spouse/Partner Track. She is a 2018 and 2019 co-chair of the NHF Bleeding Disorders Conference. Susan earned a Masters in City Planning from the University of California, Berkeley, and a BA in History and Development Studies from Smith College. She lives in Maryland with her husband and daughter.

Ziva Mann

Ziva Mann


Newton Center, Massachusetts

Ziva has worked with systems, organizations, communities and people for the past 15+ years to improve or transform the way that they work. Ziva believes firmly in sustainable, data-driven solutions co-designed by leadership, frontline staff, consumers and communities. Her work has focused on improving health, wellbeing and equity through improvement science, human centered design and shared, generative leadership. Ziva has worked with a safety net healthcare systems, the Mayo Clinic's KER Unit, Harvard's Center for Primary Care, nonprofits such as the Institute for Healthcare Improvement, and communities across the US. Ziva is currently the Director of Assessment and Development at Ascent Leadership Networks, faculty at the Institute for Healthcare Improvement, and a founding member of the leadership team for 100 Million Healthier Lives.

Ziva holds a BA from Barnard and a MA from Harvard. She is a member of NEHA's New England Bleeding Disorders Advocacy Coalition, and lives in Massachusetts with her husband, two somewhat improbable sons, and a fridge full of clotting factor. 

Advertisement