Media Newsroom

Media Relations Contact

Time sensitive requests: bspitale@hemophilia.org
Non-urgent requests: communications@hemophilia.org

About

For 75 years, The National Bleeding Disorders Foundation (NBDF*) has championed research, education, and advocacy for inheritable blood and bleeding disorders. NBDF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, the foundation impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Learn more at hemophilia.org.  (*The organization rebranded to NBDF in August 2023. Previously, the organization was known as the National Hemophilia Foundation or NHF since 1948.)

Experts Available for Interview

Experts are available for media interviews upon request. Please contact the NBDF communications team if you are interested in speaking with an expert on- or off-the-record about topics such as:

• Inheritable blood and bleeding disorders
• Hematology
• Hemophilia
• von Willebrand disease
• Rare factor disease
• Patient advocacy
• Insurance & payer relations
• Drug affordability and access to care
• Medicaid and Medicare
• Health equity
• Gene therapy and novel technologies for treatment of hemophilia
• Blood and blood-product safety
• Rare diseases
• Chronic pain and pain management
• Quality of life and disease management
• Patient experience, lifecycle, and journey
• Patient registries
• Women’s health and experiences of living with a bleeding disorder
• Menstruation and bleeding disorders
• Platelet disorders
• Patient centricity
• And more