Media Newsroom

Media Relations Contact

Ilana Ostrin, Senior Director of Public Relations & Communications
Time sensitive requests: 212-328-3769 (call or text)
Non-urgent requests: iostrin@hemophilia.org

About

For 75 years, The National Hemophilia Foundation (NHF) has championed research, education, and advocacy for inheritable blood disorders. NHF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, NHF’s impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Learn more at hemophilia.org.

Experts Available for Interview

Experts are available for media interviews upon request. Please contact Ilana Ostrin if you are interested in speaking with an expert on- or off-the-record about topics such as:

• Inheritable blood and bleeding disorders
• Hematology
• Hemophilia
• von Willebrand disease
• Rare factor disease
• Patient advocacy
• Insurance & payer relations
• Drug affordability and access to care
• Medicaid and Medicare
• Health equity
• Gene therapy and novel technologies for treatment of hemophilia
• Blood and blood-product safety
• Rare diseases
• Chronic pain and pain management
• Quality of life and disease management
• Patient experience, lifecycle, and journey
• Patient registries
• Women’s health and experiences of living with a bleeding disorder
• Menstruation and bleeding disorders
• Platelet disorders
• Patient centricity
• And more