The National Youth Leadership Institute (NYLI)  provides young people ages 18-24 years old in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others.

Meet some of the young people from the bleeding disorders community striving to become recognized leaders.

How to join the NYLI

Alexis Mod

Alexis Mod


Westfield Center, Ohio

Alexis is a Junior at Ohio Northern University, majoring in Pharmacy. She hopes to specialize in Pediatric Hematology upon graduation. Her interest in this career path stems from a diagnosis of Type 3 Von Willebrand Disease at 5 months old and also having a twin brother with Type 1 VWD. She has been involved in the bleeding disorder community from a young age and worked at Camp Bold Eagle as a counselor and lifeguard for the past 4 years. Her biggest passion is dance and is currently co-captain of ONU's dance team. She is also a sister of Kappa Alpha Theta where she serves on their executive committee while also a brother of Kappa Psi Pharmaceutical Fraternity. Through NYLI, she hopes to give back to the community which has given her so much over the years. 

Bethany McCabe

Bethany McCabe


Arvada, Colorado

Bethany McCabe is a third year student at Colorado State University in Fort Collins, CO where she is an RA and Admission Ambassador and is majoring in Journalism, concentrating in Photography and Public Relations, and minoring in Fashion & Apparel Merchandising.  Bethany is a Hemophilia carrier and has been involved in the Colorado Chapter of the National Hemophilia Foundation for about eight years now, where she has volunteered and attended camp throughout her life.  Her ultimate goal is to work for a magazine, continue writing for her blog, and have an impact on the bleeding disorder community.  She is absolutely honored to be a member of NYLI and is excited to see where it takes her!

Chelsee Nabritt

Chelsee Nabritt


Covington, Georgia

Chelsee Nabritt is a Sociology major at Kennesaw State University; and later plans to pursue her Master's Degree in Public Administration and Business Administration. One of Chelsee's main goals is to be a lobbyist in Washington, D.C. and on a local level in the state of Georgia; and hopes to start her own non-profit to help guide students who are unsure about their future, in the right direction. She loves reading, traveling, and helping others. Her favorite place to travel is anywhere in the Caribbean, however Puerto Rico is her favorite place she has visited so far. Chelsee was diagnosed with Platelet Storage Pool Disorder at the age of 7; and has been involved with her HTC since that age. She attended Camp Wannaklot as a camper from ages 7-18 years old and has volunteered as a Camp Counselor to give back to the community and stay connected with her camp friends. Chelsee hopes to lead by example and teach younger children/teens within the community that although we may have the disadvantage of having a bleeding disorder; there are so many other advantages we have and can share within our life to help impact another life within the community.

Chetan Bafna

Chetan Bafna


Tucson, Arizona

Chetan Bafna is a student at the University of Arizona and a proud advocate for non-profits, including his home chapter of the Arizona Hemophilia Association. He hopes to help expand his family's farm, become a public speaker, and guide others to live an interesting and happy life. Chetan is motivated to serve the Bleeding Disorders Community, because he witnessed the suffering impoverished Hemophiliacs must endure in India. NHF Washington Days reminds him of the power of his community when activated. His passions include botany, philosophy, and learning from others.

JD Noe

JD Noe


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Kaitlyn Wade

Kaitlyn Wade


Saint John, Indiana

Kaitlyn Wade graduated from University of Pittsburgh in April 2017 with a Bachelor of Science in Mathematics and Neuroscience. She is currently a first-year medical student at the Uniformed Services University of the Health Sciences in Bethesda, Maryland. After watching her sister struggle with a diagnosis of Von Willebrand Disease in her teen years, Kaitlyn hopes to foster relationships between the military healthcare system and the civilian community in order to ensure soldiers and their families are aware of the resources available to their children with bleeding disorders. When she is not studying for a midterm or slaving away in the anatomy lab, Kaitlyn volunteers at Camp Warren Jyrch as a camp counselor, explores the hundreds of museums Washington, D.C. has to offer, sings country music way too loud, and roots for the Chicago Cubs.

Kenadie Hamblin

Kenadie Hamblin


Orem, Utah

Kenadie is a sophomore at Utah Valley University and will be applying to their nursing program next fall. She is working toward becoming a Nurse Practitioner and wants to travel to Europe and volunteer in local hospitals and women's shelters after she graduates. She has wanted to be involved in the medical field since she was in elementary and was reassured of it after attending Camp Valor, her local chapter's summer camp. Her family has been involved with her chapter since she was diagnosed as a toddler. In her spare time, she enjoys creating cards, exploring caves, skiing and playing volleyball.

Sawsan Zamzeer

Sawsan Zamzeer


Tucson, Arizona

Sawsan Zamzeer is a second-year pre-medical student at the University of Arizona. She wants to be a Hematologist so she can help children and adults with bleeding disorders. She is also a volunteer at the University Medical Center in Tucson. She has a brother who is seven years old with Type A, Severe Hemophilia. Sawsan moved to the United States from Kuwait four years ago and has been actively involved with the Arizona Hemophilia Association since then. She wants to take this opportunity as an NYLI member to gain more knowledge about, and make meaningful connections within the bleeding disorders community. 

Troy Longman

Troy Longman

NYLI Representative


Kenockee, Michigan

Troy Longman is a law student at Florida State Univeristy College of Law. Interested in  business and commercial litigation. Troy received his Bachelor of Science degree from Ferris State Univeristy. Troy has been involved in the bleeding disorders community for several years. Troy has focused his main goal in the community to teach children with bleeding disorders how to swim. Troy worked as a lifeguard and swim instructor at Camp Bold Eagle in Michigan for five years and was promoted to the Waterfront Director position in 2018. Troy has also worked as a lifeguard and swim instructor at Camp Frozen Chozen in Alaska and Camp Honor in Arizona. Troy is very involved with his home chapter the Hemophilia Foundation of Michigan as well.

Zackery Lamphere

Zackery Lamphere


Portland, Oregon

Zackery Lamphere attends Portland Community College with plans to transfer to Willamette University in Salem, Oregon. He wishes to study Education to be a teacher or become an education specialist in Treatment Centers. Zackery became involved in the bleeding disorder community in 2011 after attending bleeding disorder camp in Oregon and has been active with his chapter ever since. He hopes to also use his education to help develop educational programs for his local bleeding disorders community. Zackery also enjoys reading, spending time with friends, meeting new people, and continuing to learn by growing his comfort zone. Zackery is excited to be a part of NYLI so he can learn more skills which he can use to give back to his chapter. He believes that a great chapter is made by the people who continually volunteer and plans to keep the spirit of giving back alive in Oregon!