Having hemophilia and other bleeding disorders can mean coping with various complications that can arise throughout the patient’s lifetime. For some patients, the immune system produces antibodies that “inhibit” clot formation. The presence of an inhibitor makes treating bleeds more difficult.
The National Hemophilia Foundation offers several resources for families affected by inhibitors. These resources include educational events that provide meaningful community support; downloadable/printable publications and brochures; informative webinars to watch on-demand; live in-person workshops hosted by our chapter network; and referrals to websites that provide more detailed information for patients and families.
When you live with an inhibitor, you and your family have questions and concerns that deserve special attention. NHF’s Educational opportunities will provide just that – quality education and meaningful community support.
Inhibitor education will cautiously return as a combination of in-person and virtual opportunities!
Our first in-person event will be hosted from August 25-27, 2022, in Houston, TX as part of the Bleeding Disorders Conference. Individuals with hemophilia A or B with an active or tolerized inhibitor or support a person with one, are invited to attend.
The Bleeding Disorders Conference enables communities to come together, network, learn and exchange information. This year the Inhibitor Summit will be integrated as its own individual track with multiple days of high quality and engaging educational sessions, ranging from the basics of inhibitors to the newest research and treatment options. The Inhibitor track at BDC will also offer networking events and opportunities to help you connect with others, who are walking on a similar path. Furthermore, you will also be able to benefit from additional educational sessions, exhibitions, and networking opportunities beyond the Inhibitor track. Please note, this program is offered in English and Spanish.
Virtually, community members will have the opportunity to enjoy webinars geared directly towards Inhibitor related topics. These include our ever growing on-demand content, including many of our amazing sessions from our 2021 Inhibitor Educational Series, as well as new content throughout 2022 (more information to follow).
For more information on how to attend the Bleeding Disorders Conference in person or virtually please visit: https://events.hemophilia.org/website/33832/
NHF has numerous publications, brochures and tools available here for download or if available print versions can be mailed to you by contacting firstname.lastname@example.org. These engaging resources span across different bleeding disorders and can you used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NHF's online education provides free quality education on issues that matter to all members of the bleeding disorders community, from parents of young children to adults with inhibitors. These webinars and webcasts bring the experience of expert providers and your peers directly to you. Watch the most recent inhibitor webinars listed below, or browse the complete listing.
NHF's Wednesday Webinars are a free education series open to providers and community members. Watch the recent webinars, browse the full listing, or register to attend upcoming Wednesday Webinars, and learn about the latest in research, breakthrough developments, and more.
Stay informed with the latest updates for the inheritable blood disorders community.