The National Hemophilia Foundation is committed to addressing the needs and concerns people living with von Willebrand disease (VWD). We offer several VWD educational publications for individuals, families and healthcare providers. In collaboration with our chapter network, we offer workshops on VWD that can be facilitated upon the request of chapter staff. All workshops and materials are offered in both Spanish and English.

  • VWD: Your Voice Matters
  • Advocating for Your Care in the ER with VWD
  • VWD and Me: Q&A

 

NHF also offers VWD education within the VWD track at NHF's Bleeding Disorder Conference.

NHF has joined the the World Federation of Hemophilia's Global VWD Call to Action. This movement provides the possibility to help correct misconceptions and increase knowledge and awareness of VWD among the general population and medical professionals. Each chapter of NHF has been invited to sign this call to action to join the global community to make a commitment to recognizing VWD and other rare bleeding disorders by taking action to create awareness, resources and provide support to improve the lives of those living with VWD.

The eight priority areas defined by WFH are:

  1. Improve diagnosis
  2. Greater leadership and advocacy among the medical community, patient community, and related organizations
  3. Consensus on standards of care (SOC) and global guidelines (GG)
  4. Request that organizations incorporate VWD into their work
  5. Address the misconception that VWD is not a serious disease
  6. Destigmatize the discussion surrounding women’s health
  7. Patient empowerment for all
  8. Safe, effective and easy to use treatments available everywhere

Learn more about NHF's outreach to undiagnosed people with VWD.

 

VWD Education Series

When you live with VWD, you and your family have questions and concerns that deserve special attention. NHF’s Education Series will provide just that – quality education and meaningful community support.

The VWD Education Series is offered at no cost to participants and is open to individuals and families from all around the world. Below is a list of upcoming and/or recently past events.

View All NHF Events

 

VWD Webinars

NHF's online education provides free quality education on issues that matter to all members of the bleeding disorders community, from parents of young children to adults with VWD. These webinars and webcasts bring the experience of expert providers and your peers directly to you. Watch the most recent VWD webinars listed below, or browse the complete listing.
 

All Webinars on VWD

VWD Wednesday Webinar Series

NHF's Wednesday Webinars are a free education series open to providers and community members. Watch the recent webinars, browse the full listing, or register to attend upcoming Wednesday Webinars, and learn about the latest in research, breakthrough developments, and more.

All Wednesday Webinars on VWD

 

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