The National Bleeding Disorders Foundation is committed to addressing the needs and concerns people living with von Willebrand disease (VWD). We offer several VWD educational publications for individuals, families and healthcare providers. In collaboration with our chapter network, we offer workshops on VWD that can be facilitated upon the request of chapter staff. All workshops and materials are offered in both Spanish and English.

  • VWD Guidelines: What They Mean For You

 

 

NBDF has joined the the World Federation of Hemophilia's Global VWD Call to Action. This movement provides the possibility to help correct misconceptions and increase knowledge and awareness of VWD among the general population and medical professionals. Each chapter of NBDF has been invited to sign this call to action to join the global community to make a commitment to recognizing VWD and other rare bleeding disorders by taking action to create awareness, resources and provide support to improve the lives of those living with VWD.

The eight priority areas defined by WFH are:

  1. Improve diagnosis
  2. Greater leadership and advocacy among the medical community, patient community, and related organizations
  3. Consensus on standards of care (SOC) and global guidelines (GG)
  4. Request that organizations incorporate VWD into their work
  5. Address the misconception that VWD is not a serious disease
  6. Destigmatize the discussion surrounding women’s health
  7. Patient empowerment for all
  8. Safe, effective and easy to use treatments available everywhere

Learn more about NBDF's outreach to undiagnosed people with VWD.

 

2024 Education

Living with VWD presents unique questions and concerns for both individuals and their families. NBDF's Educational opportunities are designed to address these specific needs, offering quality education and valuable community support. Explore various avenues to enhance your understanding of inhibitors.

In-person opportunities provide an ideal setting for learning, and one such opportunity is the annual Bleeding Disorders Conference (BDC), hosted by NBDF. This year's BDC is scheduled from September 12th to 14th, 2024, in Atlanta, Georgia. Individuals with VWD, actively dealing with their disorder or supporting someone who is, are encouraged to apply for the 2024 Connections for Learning Travel Grant.

Beyond VWD education, the conference provides multiple days of high-quality, engaging educational sessions applicable to everyone in the bleeding disorders community. Additionally, ample networking opportunities and an exhibit hall filled with resources await, helping you connect with others sharing a similar journey.

Please note, this program is offered in English and Spanish.

For more information on eligibility and how to apply for the travel grant please visit:

Connections for Learning Travel Grant

VWD Education Series

When you live with VWD, you and your family have questions and concerns that deserve special attention. NHF’s Education Series will provide just that – quality education and meaningful community support.

The VWD Education Series is offered at no cost to participants and is open to individuals and families from all around the world. Below is a list of upcoming and/or recently past events.

View All NHF Events

 

VWD Publications

NHF has numerous publications, brochures and tools available here for download or if available print versions can be mailed to you by contacting [email protected]. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.

NHF has numerous publications, brochures, and tools available here for download. Print versions can be mailed to you by contacting [email protected]. These engaging resources span different bleeding disorders and can be used for patients and families or shared with schools, workplaces, extended family members, and friends.

VWD Webinars

NHF's online education provides free quality education on issues that matter to all members of the bleeding disorders community, from parents of young children to adults with VWD. These webinars and webcasts bring the experience of expert providers and your peers directly to you. Watch the most recent VWD webinars listed below, or browse the complete listing.
 

All Webinars on VWD

VWD Wednesday Webinar Series

NHF's Wednesday Webinars are a free education series open to providers and community members. Watch the recent webinars, browse the full listing, or register to attend upcoming Wednesday Webinars, and learn about the latest in research, breakthrough developments, and more.

All Wednesday Webinars on VWD

 

Thank you to our 2023 Supporters

 

Genentech
BioMarin CSL Behring Grifols Hemophilia Alliance
Sangamo Therapeutics Sanofi Genzyme Takeda