There are between 30,000 - 33,000 people living with hemophilia in the US.
60% have severe hemophilia
15% have moderate hemophilia
25% have mild hemophilia
The most common symptoms of hemophilia are:
- Bleeding into joints
- Prolonged bleeding from cuts or injuries
But symptoms vary depending on the severity of the disease.
Hemophilia first appearance in written history is in a passage in the Talmud dating from the 2nd century AD. It stated that baby boys should not be circumcised if two of their brothers had died from bleeding from circumcision.
In the 1980s, 90% of people with severe hemophilia contracted HIV and/or hepatitis C from contaminated clotting factor. Thousands died.
No reported cases of HIV or hepatitis C have been found to be associated with clotting factor products in men with hemophilia since 1998.
The most common bleeding disorder is von Willebrand disease (VWD), affecting approximately 1 in every 100 people.
Men and women are affected by VWD equally, but women tend to have more symptoms due to their menstrual cycles.
The most common symptoms of VWD are:
- Heavy periods that last longer than 7 days
- Frequent nosebleeds that last a long time
- Easy bruising
- Bleeding from gums
The CDC estimates it takes a woman an average of 16 years from onset of symptoms to be diagnosed with VWD.