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Healthcare Reform Implementation

Healthcare Reform Implementation

NHF worked diligently during the initial stages of healthcare reform implementation to ensure that the needs of the bleeding disorders community were considered.  With our federal partners, we worked to ensure that a list of or HTCs was available to plans as they were considering essential community providers (ECPs) and provided comment letters to applicable state agencies regarding their proposals for EHB benchmark plans.

While we were successful on many fronts, advocacy is a year-long process and NHF’s public policy team continues to monitor the implementation of healthcare reform on the state and federal level to ensure access to:

  • Quality, comprehensive care;
  • All FDA approved clotting factor therapies; and
  • Access to more than one specialty pharmacy option.

In terms of state advocacy, we work with local Chapters to develop advocacy materials related to access issues and Marketplace functionality in states that have opted to manage their own. These issues are commonly addressed directly with the Marketplace, state Department of Insurance or Legislature.

We also understand that sometimes educating payers, particularly those that are new to the insurance market, about the needs of the hemophilia community can make a big difference.  Thus, we assist Chapters with developing strategies to advocate to health plan administrators regarding access issues our community faces in Marketplace plans, whether it be network adequacy or access to FDA approved clotting factor therapies. 

Finally, NHF continues to update Chapters and HTC staff regarding healthcare reform. We host a number of webinars; provide updates and training at our annual social worker Insurance and Reimbursement Conferences; and provide training during local Chapter events, including Chapter annual meetings and advocacy committee meetings, on request. To see your state's EHB letter, choose your state below.