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National Hemophilia Foundation
Address: 
7 Penn Plaza
Suite 1204
New York, NY 10001
United States
Phone: 
212.328.3700
Fax: 
212.328.3777


The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

Advocacy Efforts

File Date
PDF icon Specialty Pharmacy And Sole Source
PDF icon Standardization Of Prior Authorization
PDF icon Federal Hemophilia Programs
PDF icon HR 460
PDF icon Capitation of Hemphilia Treatement
PDF icon Removal of Travel Ban For Persons With HIV August 5, 2009
PDF icon Legislation To Create A Regulatory Pathway For The Approval Of Biosimilar August 5, 2009
PDF icon The MSM Blood Ban June 9, 2010
PDF icon SB 1536 Proposing To Reduce Funding For State Hemophilia Program March 15, 2011
PDF icon HB 552 Standards Of Care For Persons With Bleeding Disorders May 17, 2011
PDF icon Patient Assistance Programs June 9, 2011
PDF icon Support Of HB 153 June 17, 2011
PDF icon Hemophilia Program Funding September 9, 2011
PDF icon Changes In Pharmacy Reimbursement September 22, 2011
PDF icon Proposed Changes To Medicaid Reimbursement October 11, 2011
PDF icon Exemption of Clotting Factor From Medicaid Provider Cuts November 30, 2011
PDF icon Essential Health Benefit Benchmark Plans February 9, 2012
PDF icon Proposed Specialty Drug Rule February 16, 2012
PDF icon Essential Health Benefit Benchmark Plans June 15, 2012
PDF icon Essential Health Benefit Benchmark Plans June 28, 2012
PDF icon Essential Health Benefit Benchmark Plans July 10, 2012
PDF icon Essential Health Benefit Benchmark Plans August 1, 2012
PDF icon Essential Health Benefit Benchmark Plans August 1, 2012
PDF icon Essential Health Benefit Benchmark Plans August 1, 2012
PDF icon Essential Health Benefit Benchmark Plans August 9, 2012
PDF icon Essential Health Benefit Benchmark Plans August 9, 2012
PDF icon Essential Health Benefit Benchmark Plans August 9, 2012
PDF icon Essential Health Benefit Benchmark Plans August 16, 2012
PDF icon Essential Health Benefit Benchmark Plans August 20, 2012
PDF icon Essential Health Benefit Benchmark Plans August 20, 2012
PDF icon Essential Health Benefit Benchmark Plans August 21, 2012
PDF icon Essential Health Benefit Benchmark Plans August 28, 2012
PDF icon Essential Health Benefit Benchmark Plans September 11, 2012
PDF icon Essential Health Benefit Benchmark Plans September 12, 2012
PDF icon Essential Health Benefit Benchmark Plans September 14, 2012
PDF icon Essential Health Benefit Benchmark Plans September 14, 2012
PDF icon Essential Health Benefit Benchmark Plans September 19, 2012
PDF icon Essential Health Benefit Benchmark Plans September 20, 2012
PDF icon Essential Health Benefit Benchmark Plans September 25, 2012
PDF icon Enrollment In 340B Program September 28, 2012
PDF icon Proposed Rule To Require Higher Cost Share For Non-Preferred Drug in CHIP February 21, 2013
PDF icon 2013 Letter To Issuers On Federally Facilitated And State Partnership Marketplaces March 15, 2013
PDF icon FY 2014 Proposed Federal Funding For Healthcare Programs April 16, 2013
PDF icon Patient Assistance Programs August 5, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
PDF icon Federal Funding For The Division Of Blood Disorders January 2, 2014
PDF icon Patient Assistance Programs June 9, 2014
PDF icon Patient Assistance Programs June 9, 2014
PDF icon Patient Assistance Programs June 9, 2014
PDF icon Patient Assistance Programs June 9, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
PDF icon Proposed Medicaid Reimbursement Changes August 1, 2014
PDF icon Patient Assistance Programs August 5, 2014
PDF icon Patient Assistance Programs August 5, 2014
PDF icon Patient Assistance Programs August 6, 2014
PDF icon Patient Assistance Programs August 6, 2014
PDF icon NHF Comment Letter Regarding Idaho Medicaid Preferred Drug List Recommendation December 9, 2014
PDF icon Access to Skilled Nursing Facility Care for People with Hemophilia January 13, 2015
PDF icon Patients’ Access to Treatment Act February 10, 2015
PDF icon HTC Participation in the 340B Drug Discount Program July 30, 2015