This workshop will go over how to prepare in advance for an emergency (preparation and information is key!) and how to navigate difficult situations that you may encounter when in the ER.
*COVID-19 Update: The health and safety of our participants are always top priority. We are closely monitoring the COVID-19 situation as it continues to unfold and investigating all our options to bring important educational content to our community this year.
In order to move forward with Education for Empowerment programming in this time of COVID-19, NHF’s chapter liaisons will work with chapters on a case-by-case basis to plan virtual programming or to reschedule the event.
NHF is no longer accepting any additional workshop requests for 2020, except for the Gene Therapy and Mental Health workshops which are listed below.
Gene Therapy Workshop:
- Gene Therapy Basics for Hemophilia; What You Need to Know
Mental Health Workshops:
- Mental Health Basics
- Talking About What Isn’t Talked About
- PTSD in Chronic Conditions
More details on each workshop can be viewed in the 2020 Workshop Offerings PDF below. Please note, all workshops are pending speaker availability.
In order for us to find speakers for your requests, we will need all workshop topics, dates, and times need to be submitted and confirmed with your NHF staff liaison four weeks prior to the event.
Due to NHF’s national education events, we will not be able to accept any new requests for October 17-20th (NHF’s Viviendo Con Inhibidores summit) and October 29th-November 1st (NHF’s National Inhibitor Summit)
Thank you to all those who requested Education for Empowerment programming! Stay tuned for announcements about 2021!
Education for Empowerment 2020!
To better serve you, we have made some changes to the process for Education for Empowerment events. This year there will be three phase roll out plan for the new process. Please see below for more details.
1. Why the Restructure?
The NHF Education team assessed our Education for Empowerment workshop request process as well as our 2020 budget and came to the conclusion that to better you we would like to further hone our customer service oriented model and ensure that every chapter has access to programming that is of the same caliber and quality regardless of the number of events we can physically attend. Our guiding principles for the restructure are:
- Continuing to provide impactful education
- Ensure every chapter has access to programming
- Ensure NHF cost effectiveness and good stewards of our funding
- Time efficient for you and for NHF
- Customer service oriented
2. How Do the Phases Work?
You will notice in our phase plan roll out the customer service-oriented enhancements reflected by one-on-one calls with a chapter staff member and assigned NHF staff liaison. This liaison will be your key support person to provide insight and support on your workshop requests and programming needs to adequately and appropriately serve your community in 2020.
Phase I – Chapter Needs Informational Interviews
Dates: December 10 – January 10, 2019
Description: An NHF staff member will contact you via email to set up 20-30-minute calls to explain the 2020 Education for Empowerment processes and procedures and learn more about the needs of your chapter community. By participating in these calls NHF can better serve and fulfill your needs.
Phase II – Education for Empowerment Enrollment Opens and Closes
Dates: Opens December 16, 2019– Closes January 20, 2020 5 PM PDT
Description: Each chapter will have access to ONE event in Phase II. This means a chapter can request NHF workshops for ONE event, however you may request at a minimum of two workshops for the event. In Phase II, we will be offering each chapter a stipend of $750 for their event. Enrollment opens December 16, 2019 and closes on January 20, 2020. We strongly suggest waiting to book your event until you speak with your NHF staff liaison. You will hear back from your NHF Staff liaison no later than January 29, 2020 on speaker availability and next steps for your ONE event.
Phase III - First Come, First Serve Request Open (Ongoing)
Dates: Opens February 3, 2020 (time) – Ongoing
Description: NHF staff will ask you to request all remaining workshop requests on a first come first serve basis on hemophilia.org. At this point, workshops can be requested on a first come, first served basis, until we have reached our budgetary restrictions for 2020. This means that every request may not be fulfilled. All requests are also pending speaker availability. There will be no chapter stipends in this phase. In phase three you will be work closely with your assigned NHF staff liaison to fulfill your workshop needs including confirmation of the submitted information and determining the appropriate speaker for your audience.
If you have any questions, please contact Kate Nammacher, Vice President of Education, at email@example.com for more information.