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New Financial and Patient Support Services for People Living With Hemophilia

April 2, 2019
PAN Foundation and NHF Announce New Alliance to Provide Support for People Living With Hemophilia

The Patient Access Network (PAN) Foundation and the National Hemophilia Foundation (NHF) announced they are launching a new alliance to offer a broad range of support for people living with bleeding disorders. Working together, the PAN Foundation and the NHF will ensure that people living with bleeding disorders have access to both financial and patient support services, providing them with the comprehensive support needed to best manage their disease.

“At PAN, we are committed to not only helping patients overcome financial barriers to care, but also to connecting patients to services that can address the physical and emotional complexities of their disease,” said PAN’s president and CEO Dan Klein. “Partnering with NHF enables us to provide those affected by bleeding disorders with additional resources ranging from treatment and management to maintaining a healthy lifestyle.”

According to the National Institutes of Health, hemophilia is a disorder in which the blood doesn't clot normally. It is a rare disease that affects the circulatory system. The Centers for Disease Control estimates about 20,000 people are living with hemophilia and 3.2 million people are living with a type of bleeding disorder in the U.S.

“NHF is always looking for new and innovative ways to create partnerships in order to better serve those living with bleeding disorders” said NHF CEO Val D. Bias. “This collaboration with PAN opens new doors for the families we serve, helping those in the bleeding disorders community live a better life.”

Patients who qualify for the PAN Foundation’s Hemophilia Assistance Program are eligible to receive up to $5,800 per year in financial assistance to pay for the deductibles, co-pays and coinsurance costs. Patients who qualify for the PAN Foundation’s Hemophilia Premium Assistance Program are eligible to receive $4,500 per year in financial assistance for the out-of-pocket costs associated with their hemophilia treatment insurance premiums.

Eligible patients must be getting treatment for hemophilia; must reside and receive treatment in the United States; must have health insurance; and the medication for which they seek assistance must be covered by their insurance and listed on PAN’s list of covered medications. In addition, patients must fall at or below 400 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1.866.316.7263, 9am to 7pm ET, Monday through Friday. To learn more about PAN’s nearly 70 disease-specific programs, visit www.panfoundation.org.