MyBDC is a patient-powered registry that will capture a 360-degree view of living with a bleeding disorder, directly from those affected and their relatives.
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MyBDC
Welcome to MyBDC, a partnership between the bleeding disorders community and NHF.
MyBDC is a community-powered registry that will provide a 360-degree view of what it means to live with a bleeding disorder as reported directly by persons affected and their immediate family members. MyBDC will help researchers identify the community’s research priorities and encourage participants to become active partners in their healthcare.
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About
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Researchers
Bleeding disorders research from MyBDC.
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Participants
MyBDC is open to all people affected by inherited bleeding disorders as well as family members (parents, spouses, grandparents, siblings, and children).
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Frequently Asked Questions
How can I join MyBDC and other Frequently Asked Questions!