The sections below represent frequently asked questions, or “FAQs,” received by HANDI. Because they are inspired by actual questions posed by HANDI patrons, they reflect a wide range of practical topics. Please note that we will continue to add new FAQs as we continue to meet the informational needs of a growing and diverse inheritable bleeding disorders community.


NHF’s information resource center HANDI is ready to assist you! Now in its third decade, HANDI continues to be a trusted source of information and referrals for those affected by inheritable bleeding disorders and the general public.

Information specialists are adept at providing the latest resources on a wide variety of bleeding disorder-related topics, including but not limited to:

  • Hemophilia
  • Von Willebrand disease
  • Women and girls with bleeding disorders
  • Rare factor deficiencies
  • School issues
  • Aging issues
  • Financial assistance
  • Gene therapy

HANDI has access to education and information resources in print, digital, and video formats, and provides referrals to healthcare providers and HTCs, local chapters, and to other support organizations based in the United States and abroad.

There are several easy ways to reach HANDI:

Call: 800.424.2634 (extension 2), 9am-5pm Eastern, Monday to Friday,


Submit an information request via HANDI’s online portal.

The HANDI Team looks forward to hearing from you!

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NHF does not give medical advice nor engage in the practice of medicine. NHF under no circumstances recommends a particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment. All requests for information submitted to HANDI are kept strictly confidential.

We Thank Our 2022 Partners

Bayer BioMarin CSL Behring Grifols
Hemophilia Alliance Pfizer Sanofi Takeda