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Keywords
Who We Are
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Mission & History
What We Do
What Do We Value?
Health Equity
Accomplishments
Financial Statements
Media Newsroom
The National Hemophilia Foundation Has a New Name
The Red Thread: 75th Anniversary Celebration
Our Team
Staff
Board of Directors
MASAC
Meet the NYLI
Nursing Working Group
Physical Therapy Working Group
Social Work Working Group
Our Partners
Partners In Progress
The ACT Initiative
Red Tie Society
CDC Coop Agreement
Pathway to Cures
Careers
What Do We Value?
Career Opportunities
Volunteer Opportunities
Bleeding Disorders A-Z
Overview
Fast Facts
What is a Bleeding Disorder?
History
Types of Bleeds
Inhibitors
Women and Bleeding Disorders
Types
Hemophilia A
Hemophilia B
Von Willebrand Disease
Other Factor Deficiencies
Inherited Platelet Disorders
Treatment
Comprehensive Medical Care
MASAC For You
Treatment Guidelines (MASAC)
Current Treatments
Future Therapies
Clinical Trials
Shared Decision-Making
Healthcare Coverage
Choosing an Insurance Plan
Private Insurance
Public Insurance
Health Insurance Toolkit
Educational Programs
Education
Bleeding Disorders Conference
Inhibitor Education
Online Education
Rare Bleeding Disorders
Von Willebrand Disease
Mental Health
Gene and Innovative Therapies
Women
Educational Programming
Own Your Path
Clotting Cascade
Training
Youth Leadership (NYLI)
Outreach
Undiagnosed
Guías Culturales
Advocacy
Federal Priorities
Access to Care
Federal Programs
Medicare
Medicaid
Blood & Blood Product Safety
Make All Copays Count
State Priorities
Utilization Management
Patient Out-of-Pocket Expenses
Medicaid
How You Can Take Action
Register to Vote
Washington Days
Advocacy Do’s and Don’ts
6 Steps for Grassroots Advocacy
Tell Your Story
Managed Care & Payers
Collaborating on Coverage
Quality of Care Guidelines
CME/CE Webcast Series
Educational Web Portal
Quality Improvement & Cost Management
Research
Research Projects
Foundation Research
Funded by Foundation
Presented at Our Conference
Research Journal Club
Clinical Trial Essentials
coreHem Mental Health Tool
Fund Your Research
Judith Graham Pool Postdoctoral Research Fellowship
Career Development Award
Nursing Excellence Fellowship
Physical Therapy Excellence Fellowship
Social Work Excellence Fellowship
Community Voices in Research
What is CVR?
How & Why Should I Participate?
Impact on Research
Frequently Asked Questions
What We’ve Learned So Far
National Research Blueprint
What is the National Research Blueprint?
Involvement from Across the Community
Lived experience experts (LEEs) leading the way
Building the Blueprint
Research Priorities
Healthcare Professionals
Guidelines on Care
Comprehensive Care
MASAC Documents
Products Licensed (US)
Emergency Management
Snapshots of VWD Guidelines
Education & Resources
NBDF-Takeda Clinical Fellowship Program
NBDF’s Collaborative Learning Exchange
Online Education for Providers
Live & Online Learning (Partners)
Rare Coagulation Resource Room
Peer-reviewed Journals
NBDF Publications
Other Associations
Allied Healthcare
Nursing
Physical Therapy
Social Work
Community Resources
Request Information
Contact Us
HANDI - NBDF's Information Resource Center
Read Our Publications
Subscribe for Email Updates
Get HemAware Magazine
Newsletter Archive
Wednesday Webinar Series
Resources Near You
Chapters
Hemophilia Treatment Centers
Clinical Trials
Bleeding Disorders Camps
Financial Assistance
Scholarships
Patient Assistance Programs
Contact Us
Subscribe
News
Events
Give
Give Now
Make a Donation
Give Monthly
Honor a Loved One
Support Research
Why Give?
Kevin Child Scholarship Donation Form
Physician Partners
Other Ways to Give
Be a Corporate Partner
Donate Your Car
Give Stock
Make a Planned Gift
Create a Will
Donor Advised Funds
Fundraise
Run in a Marathon
2024 United Airlines New York City Half Marathon
Create Your Own Fundraiser
Fundraise on Facebook
Join Us
Red Tie Soiree
Bleeding Disorders Awareness Month
Find a Walk
For Young Professionals
NBDF’s Established Initiatives & Impact >
Johanna Ong
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Johanna Ong
Senior Manager of Conference & Travel Services
