People with bleeding disorders and caregivers often educate schools, workplaces, health care teams and communities to ensure the right care and support to thrive. The Hemophilia Experiences, Results and Opportunities (HERO) study found that while many people are satisfied with support from partners, friends and family, a major roadblock to support from others was lack of knowledge about bleeding disorders. This module offers insight and sample scenarios on how to educate others and ask for support in areas such as education (including 504 plans and IEPs), the workplace, social life, dating, sports, child care, and health care (including ER visits, self-care, pain management and mental health).
Edward Kuebler, MSW, LLC
Cathy Tiggs, MSSA, LISW
Module content created by Dana Francis, MSW; Edward Kuebler, MSW, LLC; and Laurel Pennick, MSSW, LCSW.
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