When you have an ultra-rare bleeding disorder, it can be difficult to find the kind of specialized support you need. You need to talk to experts who understand the nuances of your disorder, and a community that knows what you are going through. Living Rare is a four-part series that will enable you to learn more about managing the physical and emotional aspects of living with a rare bleeding disorder.
We invite you to register for the fourth part of the series addressing the topic of reproductive health held on Saturday, October 9, 2021 starting at 3:00PM EST/2:00PM CST/1:00PM MST/12:00PM PST/10:00AM HST. The event is free and open to everyone from around the world.
Registration for the event will provide a personal link via email to access the event, and all sessions will be held in the same virtual room. Please note registration for the event will close an hour before the event start time.
Event Agenda
A Candid Conversation On Reproductive Health - 3:00PM ET to 3:50PM ET
During this session, participants will learn from a panel of community members who will share their experiences on various reproductive health topics. The panel will discuss topics such as family planning, relationship and fertility obstacles, shared decision-making, self-advocacy, educating your child, and more.
Industry Roundtable with CSL Behring - 4:00PM ET to 4:30PM ET
Chat with our industry sponsors and learn about new products and programs.
Sponsor Roundtable with Hemophilia Alliance - 4:00PM ET to 4:30PM ET
Chat with our sponsor and learn about new programs.
Reproductive Health: The Provider Lens - 4:45PM ET to 5:30PM ET
During this session participants will learn from a panel of healthcare providers, including a genetics counselor, obstetrician/gynecologist, hematologist, and physical therapist. The panel will discuss topics such as genetic counseling, preparing for pregnancy and birth, partner relationship issues, and more!
Industry Roundtable with Bio Products Laboratory - 5:40PM ET to 6:15PM ET
Chat with our industry sponsors and learn about new products and programs.
Industry Roundtable with Takeda - 5:40PM ET to 6:15PM ET
Chat with our industry sponsors and learn about new products and programs.
Follow Your Flow: Reproductive Health & You - 6:25PM ET to 7:10PM ET
How does reproductive health affect you and your ultra-rare community? This session will seek to build on learning from previous sessions and offer a small group setting for attendees to engage with speakers and one another on the topics of genetic counseling and periods/menstruation.
Industry Roundtable with Novo Nordisk - 7:10PM ET to 7:40PM ET
Chat with our industry sponsors and learn about new products and programs.
For more information, please email Rares@hemophilia.org
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