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Untold Journeys: A Glimpse into Ultra-Rare Bleeding Disorders

  • Moderator: Michael DeGrandpre, Community Advocate
  • Panelist 1: Paxton Mills, Person with Platelet Storage Pool Deficiency
  • Panelist 2: Troy Longman, Person with Dysfibrinogenemia
  • Panelist 3: Frances Rivera Pacheco, Person with Factor V Deficiency

Explore the remarkable narratives of the ultra-rare bleeding disorders community and gain a deeper understanding of the pivotal role advocacy plays in their journeys, especially in overcoming significant challenges. Our panel, hailing from diverse backgrounds and diagnoses, will illuminate their experiences, offering valuable insights into resilience and determination.

NBDF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in research, breakthrough developments, and more.

Register for Wednesday Webinar Series