Sep 21, 2022

FOR IMMEDIATE RELEASE                                                                                
Ilana Ostrin    
Senior Director of Public Relations and Communications   
iostrin@hemophilia.org  
212-328-3769  
 
Upcoming topics include emerging research, key political issues, and more.
 

NEW YORK, NY – The National Hemophilia Foundation is proud to announce its upcoming fall lineup for the Wednesday Webinar series. Webinars are free to attend and feature expert researchers and industry professionals. Throughout the fall, webinars will explore various novel research topics and current events relevant to the inheritable blood and bleeding disorders community.  
 

As of press time, the fall webinar schedule is as follows*:   

  • October 5: Kate Khair summarizes the Exigency Study, a collection of perspectives on gene therapy from parents of children with hemophilia. 

  • October 12: NHF Director of Education Lena Volland dives into rare blood and bleeding disorders. 

  • October 19: Nathan Schaefer and Bill Robie from the NHF Public Policy team examine the important issues to watch during upcoming elections. 

  • October 26: Dr. Robert Klamroth explores global seroprevalence of pre-existing immunity against AAV5 and other AAV serotypes in people with hemophilia A. 

  • November 2: Dr. Ashish Kumar analyses diagnostic considerations for optimizing patient outcomes in those with hemophagocytic lymphohistiocytosis. [NOTE: This webinar will be available for CE credit and will have a different ZOOM link than normal.] 

  • November 9: Dr. Shurti Chaturvedi details current and emerging perspectives on chronic immune thrombocytopenia. [NOTE: This webinar will be available for CE credit and will have a different ZOOM link than normal.] 

  • November 16: Lena Volland returns to elaborate on von Willebrand disease. 

  • November 30: NHF Director of Individual Giving Maureen Parsons discusses the impact and importance of Giving Tuesday and end-of-year giving. 

  • December 7: Dr. Richard Ko evaluates the effects and interferences of Emicizumab on coagulation assays. 

  • December 14: Dr. Barbara Konkle shares an update on why efanesoctocog is a truly long-acting FVIII replacement product. 
     
    *(Webinar scheduling is subject to change; please visit hemophilia.org/events and follow NHF on Twitter for the latest updates.)  

 
After December 14, webinars will resume in mid-January 2023. Webinars are live streamed via ZOOM, Facebook, LinkedIn and YouTube at 2 p.m. EST each Wednesday. An audience Q&A session begins at approximately 2:45 p.m. Questions may be submitted during the webinar or in advance via email at communications@hemophilia.org.   

 
All webinars are free and open to the public. Online registration takes just a few simple clicks via NHF's calendar.  

 
NHF created the weekly webinar series in 2020 to educate and inspire throughout the height of the COVID-19 pandemic. Since then, the webinars have continued to serve the inheritable blood and bleeding disorders as an informative and popular weekly event. Click here to view past webinar recordings.  

 
Those with questions are encouraged to contact Ilana Ostrin, Sr. Director of Public Relations and Communications at ilana@hemophilia.org.   

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For nearly 75 years, The National Hemophilia Foundation (NHF) has championed research, education, and advocacy for inheritable blood disorders. NHF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, NHF’s impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Learn more at hemophilia.org.