NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
The expression of codon-optimized blood coagulation factor VIII using a lentiviral system
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Hemophilia Inhibitor PUP Study (HIPS)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
The use of combination therapy with plasma derived and recombinant factor VIII in patients with hemophilia A: a single institution experience
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Point-of-care musculoskeletal ultrasound is critical for the diagnosis of hemarthroses and soft tissue inflammation in adult patients with painful hemophilic arthropathy
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Pain and Arthropathy Impact Quality of Life of Young Adults With Hemophilia (ages 18-30) in the United States: Observations From the Hemophilia Experiences, Results and Opportunities (HERO) Study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
The effects of FXIa on clot formation and lysis in the thrombin generation assay
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Addressing patient concerns about product switching in hemophilia A: Evaluating turoctocog alfa data from the guardian™ clinical trial program
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Real-world dosing of factor in hemophilia A patients
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Does Quality of Life improve with successful immune tolerance induction? An illustrative case report.
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Retrospective Database Analysis of the Prevalence of Cardiovascular Comorbidities in a US Patient Population with Hemophilia A: Confirmation of Findings
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Hemophilia Genotyping Results from the My Life, Our Future Project
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
SPINART Trial 3-Year Results With Bayer’s Sucrose-Formulated Recombinant Factor VIII: Improved Joint Function and Health-Related Quality of Life in Adults Using Prophylaxis
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Dosing Routines and Bleeding Rates Before and Following Treatment with rFVIIIFc in the A-LONG Clinical Study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Safety of BAX 855, a Polyethylene Glycol (PEG) Conjugated Full-Length Recombinant Factor VIII Product
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Prevalence of Depression in US Patients with Hemophilia A Compared with a General Medical Population: A Retrospective Database Analysis
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Study Design of a Phase 3, Open-Label Trial of the Safety and Efficacy of Recombinant Factor IX Fc Fusion Protein for the Prevention and Treatment of Bleeding Episodes in Previously Untreated Patients With Severe Hemophilia B
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Hemophilia of Georgia's Preventive Dental Program
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Bleeding Risk for the Active Person with Hemophilia: A Comparison of Factor VIII Treatment Regimens
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Depression in children with severe Hemophilia - a pilot study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Using Oral History for Patient Education: The Gift of Experience II: Conversations with Parents about Hemophilia
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models