NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Modelling the transfer of rFVIIa procoagulant signal from tissue factor to platelets
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Ongoing Prospective ADVATE Immune Tolerance Induction Registry (PAIR) Continues to Demonstrate Success Rates Consistent with Published Literature
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Safety and efficacy of a recombinant factor IX (BAX326*) in pediatric previously-treated patients with hemophilia B
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Hemophilia impacts relationships and employment of young adults (ages 18-30) in the us hemophilia experiences, results and opportunities (hero) study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Identification of Previously Unreported F8 and F9 Gene Mutations in Hemophilia Subjects From the Phase 3 Clinical Trials of rFVIIIFc and rFIXFc
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Changes in Healthcare Resource Utilization and Haemophilia Related Events in Patients Diagnosed with Haemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Real-world Dosing Patterns of Factor in Hemophilia B Patients
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Comorbidities among Adults with Hemophilia: Hemophilia Utilization Group Studies (HUGS V)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Dosing Flexibility in Prophylaxis Regimens With Bayer’s Sucrose-Formulated Recombinant Factor VIII: Experience From Postmarketing Surveillance Studies
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Production and Characterization of BAX 855, PEGylated rFVIII with Extended Half-Life
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
A Prospective Case-Control Study of Bleeding Phenotype in Hemophilia A Carriers
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
A Study Evaluating the Impact of myCubixx, an Innovative Factor Inventory Management and Storage System with Selected Outcomes on People with Hemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Don’t Push Your Luck! Educational Board (not Bored) Game for Families Living with Hemophilia
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Gingival Bleeding and Oral Hygiene in Women with von Willebrand Disease
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Home infusion/specialty pharmacy inhibitor management program leads to patient/provider collaboration to facilitate enhanced program and patient outcomes
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The Impact of Reduced Treatment Frequency: Qualitative Evaluation of Adherence and Outcomes in Chronic Disease Management
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
The Medical Home Neighbor: The Intermountain Hemophilia and Thrombosis Center’s Experience with Quality Improvement via the Children’s Health Improvement Collaborative Medical Home Demonstration Project in Utah
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
New insights from modeling FVIII Kinetics of Native vs. Extended Half-life FVIII Products - Comparing FVIII Coverage under Various Dosing Scenarios
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Systematic review of clinical trials results assessing health-related quality of life in hemophilia patients receiving prophylaxis
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Real World Utilization and Cost of aPCC versus rFVIIa Among Hemophilia Patients with Inhibitors in the US
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies