Research Presented at Our Conference

Changes in Healthcare Resource Utilization and Haemophilia Related Events in Patients Diagnosed with Haemophilia A

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Orthopedic and Physical Therapy

RESEARCHERS:

Dana Stafkey-Mailey, Joan Gill, Jennifer Pocoski, Michael Eaddy, Abhijit Gadkari

Real-world Dosing Patterns of Factor in Hemophilia B Patients

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Brieana Buckley, Terrie Livingston, Sanjay Mehta, Sangeeta Krishnan

Comorbidities among Adults with Hemophilia: Hemophilia Utilization Group Studies (HUGS V)

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Mimi Lou, Joanne Wu, Megan Ullman, Marion Koerper, Jiat Ling Poon, Xiaoli Niu, Barbara A. Konkle, Roshni Kulkarni, Randall Curtis, Michael Nichol

Dosing Flexibility in Prophylaxis Regimens With Bayer’s Sucrose-Formulated Recombinant Factor VIII: Experience From Postmarketing Surveillance Studies

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Thomas J. Humphries, Stephan Rauchensteiner, Claudia Tückmantel, Alexander Pieper, Monika Maas Enriquez, Prasad Mathew

Production and Characterization of BAX 855, PEGylated rFVIII with Extended Half-Life

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Jürgen Siekmann, Martin Purtscher, Oliver Zöchling, Artur Mitterer, Mary Bossard, Gayle Philips, Martin Kaliwoda, Michael Graninger, Peter Matthiessen, Gerald Schrenk, Herbert Gritsch, Hanspeter Rottensteiner, Friedrich Scheiflinger, Peter L Turecek

A Prospective Case-Control Study of Bleeding Phenotype in Hemophilia A Carriers

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Women's Research

RESEARCHERS:

Allison Paroskie, Michael DeBaun, Robert Sidonio

A Study Evaluating the Impact of myCubixx, an Innovative Factor Inventory Management and Storage System with Selected Outcomes on People with Hemophilia A

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Josh Epstein, Diane Ito, Sharon Richardson

Characteristics and Treatment Patterns of Medicaid Patients with Hemophilia A Receiving Prophylaxis vs. On-Demand Factor VIII Therapy

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Orthopedic and Physical Therapy

RESEARCHERS:

Jennifer Pocoski, Joseph LeCates, Abhijit Gadkari, Mei Sheng Duh, Francis Vekeman

Adherence and outcomes in hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Jeffrey Vietri, Robert Furlan, Sangeeta Krishnan

Pathogen Safety of Plasma-Derived Clotting Factor Concentrates Demonstrated by Validation of Inactivation and Removal Steps in the Manufacturing Process

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Robert Klamroth, Albrecht Gröner, Toby L. Simon, Henry Mead

Effect of Albumin Fusion on the Biodistribution of Recombinant Factor IX-FP

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Eva Herzog, Stephen Harris, Andrew McEwen, Ingo Pragst, Gerhard Dickneite, Stefan Schulte, Sabine Zollner

Use of a double virally inactivated FVIII/VWF in 30 children and young people with von Willebrands disease - a single centre experience

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Kate Khair, Jemma Efford, Mary Mathias, Bruce Schwartz, Ri Liesner

Psychosocial Intervention To Improve Compliance with Comprehensive Care Visits

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Melinda Galizia, Alice Cohen, Phyllis Kandl, Ellen White

Clinical Study to Investigate the Immunogenicity, Efficacy and Safety of Treatment with Human-cl rhFVIII in Previously Untreated Patients with Severe Haemophilia A

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Sigurd Knaub, Ri Liesner, Martina Jansen

Long-Term Follow-Up of Arteriovenous Fistulae in Bleeding Disorders

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Colleen Tapia, Maria Tovar-Herrera, John Urgo, Walter McCarthy, Lisa Boggio, Mindy Simpson, Leonard Valentino

Efficacy of a strength training program for improving elbow joint range of motion and function in adults with hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Hilary Smith, David Oleson, Nancy Durben, Michael Recht

Understanding the psychosocial undercurrents in spontaneous bleeds in severe hemophilia A to facilitate collaboration and customized/personalized regimens: a case study

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Collaboration/Team Models

RESEARCHERS:

Avinash Patwardhan, Joan Couden, Kirstin Schmidt, Jose' Iglesias

Predicting PK/PD advantages of modified activated coagulation factor VII molecules

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Alexey M Shibeko, Samuel A Woodle, Timothy K Lee, Mikhail V Ovanesov

A-LONG: Phase 3 Study of Long-Lasting Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Hemophilia A

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Johnny Mahlangu, Jerry Powell, Margaret Ragni, Neil Josephson, Roshni Kulkarni, Patrick Fogarty, Amy Shapiro, Ivan Nesterov, Haiyan Jiang, Jurg Sommer, Jennifer Dumont, Alvin Luk, Aoife Brennan, Glenn Pierce

Oral Care for People with Von Willebrand Disease: An Unmet Need

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Law/Ethics/Health Policy

RESEARCHERS:

Rebecca Schaffer, Elif Aksoylu, Henry Martinez