Social Work Research Fellowship: Defining the HTC Social Worker Role

Moderator/Speaker:

Amy K. Wilson, MSW, LICSW, ACM
Clinical Social Worker
M Health Fairview Center for Bleeding & Clotting Disorders

 

Speakers:

Kathaleen M. Schnur, MSW, LCSW
Social Worker Hemophilia Center of Western Pennsylvania

Diane Bartlett, LCSW, OSW-C
Social Worker, St. Luke’s Hemophilia Center

Spencer Moorman, MSSW, LCSW
Social Worker, University of Louisville School of Medicine

 

Finding the Flow: Development and Implementation of Clinics for Women and Girls with Inherited Blood Disorders (*ANCC)

Moderator:

Kimberly Hurdstrom, RN, BSN, CCCTM
Hemophilia & Thrombosis Center,
University of Colorado School of Medicine
University of Colorado Denver

 

Speakers:

Anne Harvey, DNP, C-PNP
Pediatric Hematology Nurse Practitioner
Primary Children’s Hospital, Salt Lake City, UT

Genevieve Moyer, MD, M.Sc.
Assistant Professor, Division of Hematology
University of Colorado- Denver

 

MSKUS Guidelines, Pain Management and Orthopedic Updates

Moderator:

Christopher E. Walsh, MD, PhD
Associate Professor of Medicine, Division of Hematology and Medical Oncology Icahn School of Medicine at Mount Sinai Director,
Hemophilia Treatment Center, Mount Sinai Hospital, NY

 

Speakers:

Cindy Bailey, PT, DPT, OCS, SCS, ATC
Director of Physical Therapy/OT
Orthopaedic Hemophilia Treatment Center
LA Orthopedic Hospital Rehabilitation Department Los Angeles, CA

Venous Thromboembolism, Inherited Thrombophilia, and COVID-19 in the Setting of Inherited Bleeding Disorders (*ANCC)

Moderator:

Kelly Tickle, MSN, APN, PPCNP-BC
Pediatric Nurse Practitioner, Children’s Healthcare of Atlanta

 

Speaker:

Gary Woods, MD
Assistant Professor of Pediatrics, Emory University School of Medicine
Medical Director of Thrombosis, Associate Director, Stroke Program,
Aflac Cancer & Blood Disorders Center/Children's Healthcare of Atlanta

 

After completing this activity, the participant should be better able to:

Health Literacy: Helping Patients Navigate and Understand Healthcare Information

Moderator:

Brittany Savage, MSN, AGPCNP-BC
Bleeding Disorders Transition Nurse Practitioner
Indiana Hemophilia and Thrombosis Center Indianapolis, IN

 

Speaker:

Lisa Littner, MPH, MSW, LISW-S,
CHES Education Specialist
Cincinnati Children’s Hospital Medical Center
Hemophilia Treatment Center, Cincinnati, OH

Tamara Bullock, RN-BC, BSN
Hemophilia Community Nurse
University of Iowa Hospitals and Clinics

 

Management of Patients with Hemophilia A and Inhibitors in the Era of Non-Factor Therapies (*ANCC)

Moderator:

Kelly Tickle, MSN, APN, PPCNP-BC
Pediatric Nurse Practitioner, Children’s Healthcare of Atlanta

 

Speaker:

Glaivy Batsuli, MD
Assistant Professor of Pediatrics, Emory University,
Dept. of Pediatrics Pediatric Hematologist
Div. of Pediatric Hematology and Oncology
Aflac Cancer & Blood Disorders Center/Children's Healthcare of Atlanta

 

Health Equity and Access to HTCs

Moderator:

Len Valentino, MD, President and CEO,
National Hemophilia Foundation

 

Speakers:

Melissa S. Creary, Ph.D., MPH
Assistant Professor of Health Management & Policy
Senior Director, Office of Public Initiatives
American Thrombosis & Hemostasis Network
Ann Arbor, MI

Judith R. Baker, Dr.PH., MHSA
Public Health Director
Center for Inherited Blood Disorders Orange, CA

Mark Skinner, JD
Institute for Policy Advancement, Washington, DC

Public Health: Aging

NOT AVAILABLE FOR CREDIT

Speakers will discuss a range of topics including new international guidelines for the diagnosis and management of hereditary hemorrhagic telangiectasia (HHT), mental and emotional health challenges in aging thalassemia patients, aging with a bleeding disorder, basics of Medicare, and skilled nursing facilities.

Beyond the Diagnosis: The Impact of Bleeding Disorders on Women & Girls

Moderators:

Kaitlin Barnett, LCSW
Social Worker, Mount Sinai Hospital Hemophilia Treatment Center

Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center

 

Speakers:

Kristina Haley, D.O., MCR
Associate Professor, Pediatric Hematology/Oncology
Director, The Hemophilia Center
Oregon Health & Science University, Portland, OR

Fear of Needles and Needle Phobia: How Can We Help?

Moderators:

Christi Humphrey, LCSW
Social Worker, Hemophilia of Georgia, Inc.

Kathaleen M. Schnur, LCSW
Social Worker, Hemophilia Center of Western Pennsylvania

 

Speakers:

Annalise A. Guerra, MSW
Clinical Social Worker/Psychotherapist Univ. of Miami HTC

Emily Wheat, Ph.D.
Assistant Professor, Dept. of Pediatrics Psychologist,
University of Colorado, Hemophilia and Thrombophilia Center,

Public Health: Health Equity

NOT AVAILABLE FOR CREDIT

Speakers will discuss several topics: understanding and addressing sickle cell disease healthcare disparities, health equity issues impacting optimal care in thalassemia, health equity, and the influence on blood clots – pre and post COVID data, and the burden of healthcare in hereditary hemorrhagic telangiectasia.

International VWD Guidelines and Novel Therapies for VWD

Moderator:

Christopher E. Walsh, MD, PhD
Associate Professor of Medicine, Division of Hematology & Medical Oncology
Icahn School of Medicine at Mount Sinai
Director, Hemophilia Treatment Center, Mount Sinai Hospital, NY

 

Speakers:

Cécile Denis, Ph.D.
Director of Research French National Institute of Health and Medical Research (INSERM) Le Kremlin-Bicêtre, Cedex, France

Change: A Caregiver's Inner Dialogue About Loss, Body, and Illness

Moderators:

Denise Lowery, LCSW
Social Worker, UC Davis Medical Center

Alfredo A. Narvaez, Jr., MSW, LMSW
Social Worker, Louisiana Comprehensive Hemophilia Center
Tulane University Medical Center

 

Speaker:

Kevin Quiles, M.Div., M.A., LPC, RYT-200
Licensed Professional Counselor
Canton, GA

 

After completing this activity, the participant should be better able to:

Public Health: Women's Health Issues

NOT AVAILABLE FOR CREDIT

Speakers will discuss a spectrum of topics: maternal mortality and blood disorders, Healthy People 2020 and females with von Willebrand disease, mentors for workforce development and research, the Women in Research Engaged While Distancing (WIRED) program, and the use of Community Voices in Research (CVR) to promote self-advocacy and empowerment for women.

Social Work Precon: Race, Racism, and Implicit Bias: What can we do about it?

Moderators:

Betsy Boegeman, MSW, LGSW, LADC
Social Worker
Children’s Minnesota Cancer & Blood Disorders Program

Amanda Stahl, MSW, LICSW
Clinical Social Worker
Boston Hemophilia Center, Brigham and Women’s Hospital

 

Speaker:

Ed Morales, MPP, MSW, LICSW
Principal
Socorro Consulting Minneapolis, MN

 

After completing this activity, the participant should be better able to:

Nursing Precon: von Wille What?

Moderator:
Jennifer Donkin, RN, DNP, CPNP, CFNP
Nurse Practitioner, Children's Hospital of Los Angeles

 

Speakers:

Amanda Greene, RN, MSN
Hemophilia Pediatric Lead Nurse Coordinator
Comprehensive Bleeding Disorders Center of Emory University
and Children’s Healthcare of Atlanta

Kimber Blackwell, MPAS, PA-C
Physician Assistant, Indiana Hemophilia and Thrombosis Center, Indianapolis, IN

Genetic Analysis and Other Diagnostic Tools for Rare Bleeding and Platelet Disorders

NOT AVAILABLE FOR CREDIT

This Second Annual Victor Grifols Roura Medical Preconference Symposium explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. Faculty will be reviewing the treatments currently available to manage bleeding in these patients and share significant advances being made to improve genetic diagnosis, including valuable insights on how to interpret rare platelet gene panels.

This symposium was made possible only through the generous support of Grifols.

Public Health for Women & Girls

NOT AVAILABLE FOR CREDIT

After a successful public health offering at NHF’s 2019 BDC, NHF decided to collaborate with several national blood disorder advocacy organizations to deliver two public health sessions for chapters and consumers. This session will address women’s issues in public health and was created by the National Blood Clot Alliance, Center for Inherited Bleeding Disorders, Cooley’s Anemia Foundation, Foundation for Women and Girls with Blood Disorders, NHF, and HFA.

Marijuana: Breaking it Down, the Good, the Bad, and the Consumption

*ASWB

Moderators:

Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania

Alfredo A. Narvaez, Jr., MSW, LMSW
Social Worker, Louisiana Comprehensive Hemophilia Center
Tulane University Medical Center

Speaker:

Khalid Namoos
Medical Fellow, UCLA David Geffen School of Medicine

By the end of this session, the participant should be better able to:

Prevalence of Depression and/or Anxiety in Children Seen at the Arizona HTC’

*ASWB

Moderators:

Amy Schadewald, MSW, LICSW, ACM
Clinical Social Worker, M Health Fairview Center for Bleeding and Clotting Disorders

Connie Thibodeaux, MSW, LCSW, BAC
Hemophilia Social Work Coordinator
Louisiana Center for Bleeding & Clotting Disorders
Tulane University School of Medicine / Deming Department of Medicine

Speaker:

Ethics: Blurred Boundaries

*ASWB

Moderators:

Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania

Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center

Speaker:

Alana Brunner, LCPC, NCC, CCMHC
Mental Health Therapist
St. Luke’s Psychiatric Wellness

By the end of this session, the participant should be better able to:

Cannabis Applications & Implications

*ANCC

Speaker:

Khalid Namoos
Medical Fellow, UCLA David Geffen School of Medicine

By the end of this session, the participant should be better able to:

  • Compare cannabis formulations and discuss the evidence for their potential use
  • Discuss the evidence for clinical indications for cannabis use
  • Describe the pharmacokinetics and physiological effects of cannabis 

Mild Phenotypes: The Struggle is Real

*ANCC  

Moderator:

Jennifer Donkin, RN, DNP, CPNP, CFNP
Nurse Practitioner
Children's Hospital of Los Angeles

Speakers:

Sharon L. Littig, RN
Clinical Coordinator
Cardeza Foundation Hemophilia Center at Jefferson University

Penni J. Smith, MPA, BSN, RN-BC
Hemophilia/Hematology RN Coordinator
Utah Center for Bleeding and Clotting Disorders
Primary Children’s Hospital  

Today's Technology

*ANCC

Moderator:

Tamara Bullock, RN-BC, BSN
Hemophilia Community Nurse, University of Iowa Hospitals and Clinics

Speakers:

Penny Kumpf, RN-BC, BSN
Von Willebrand Outreach Nurse
Hemophilia of Georgia

Michael DeGrandpre
Creative Director
Hemophilia Federation of America

By the end of this session, the participant should be better able to:

Disorders of Fibrinogen

*ANCC

Moderator:

Kimberly Hurdstrom, RN, BSN
Hemophilia & Thrombosis Center, University of Colorado School of Medicine
University of Colorado Denver

Speaker:

Marilyn Manco-Johnson, MD
Director, Hemophilia & Thrombosis Center
Professor, Pediatrics Hematology-Oncology
University of Colorado School of Medicine
University of Colorado Denver

By the end of this session, the participant should be better able to:

Forging a New Path – Gene Therapy Readiness and HTC Implementation

*CME/ACPE

Moderator/Speaker:

Steven W. Pipe, MD, Faculty Chair
Professor of Pediatrics and Pathology
Laurence A. Boxer Research Professor of Pediatrics and Communicable Diseases,
Pediatric Medical Director, Hemophilia and Coagulation Disorders Program,
Director, Special Coagulation Laboratory,
University of Michigan
Ann Arbor, Michigan

Speakers:

Challenging Cases

*ANCC

Moderators:

Sharon L. Littig, RN
Clinical Coordinator
Cardeza Foundation Hemophilia Center at Jefferson University

Jessica Pindilli, BSN, RN
University of Wisconsin Hospital & Clinics
UWHC Comprehensive Program for Bleeding Disorders

Speakers:

Maria Tovar-Herrera, RN-BC, BSN
RN Coordinator
Rush Hemophilia and Thrombophilia Center

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