Mental Health for the Next Generation
Good mental health is important at any age but this session is designed for teens, young adults, and their support community. We will focus on developing strategies and tools for good mental health during a period of life when teens and young adults are experiencing the transition to becoming independent.
Making Room for Recovery
This session explores the risks and realities of substance abuse issues in the bleeding disorders community. Participants will learn strategies to recognize, understand and support those living with substance abuse issues.
What's Beneath the Surface: Connecting Pain Management and PTSD
This session will apply a psychosocial lens to PTSD and chronic pain by exploring the connection between the two conditions and uncovering potential pain management and coping strategies.
Intersections: Embracing Cultural Confidence™ in the Face of Anti-Asian Racism
NHF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: embracing cultural confidencetm in the face of anti asian racism
The Psychosocial Impact of COVID-19 and Social Unrest
NHF provides free quality education on issues that matter to the bleeding disorders community. This video is about the psychosocial impact of covid 19 and social unrest
Taking Care of Yourself While Taking Care of Others
NHF provides free quality education on issues that matter to the bleeding disorders community. This video is about taking care of yourself while taking care of others
Descriptive Study Looks at HTC Social Worker Roles
While social workers have functioned as essential members of the multidisciplinary care teams at the core of U.S. hemophilia treatment center (HTC) network since its establishment in 1975, a breakdown of their primary roles, both actual and “ideal,” have not been clearly established.
MMWR Report Looks at COVID-19’s Impact in Public Health Workers
NHF and HFA Unite in New Partnership
September 7, 2021
FOR IMMEDIATE RELEASE
Media Contacts
Rare Series: Baby Steps Navigating Past the Pandemic
Inhibitor Education Series: Baby Steps Navigating Past the Pandemic
New Descriptive Study Looks at Bleeding Disorder Camps
While it has been well established that bleeding disorders
PTSD in Chronic Conditions
During this session, you will gain a deeper understanding of post-traumatic stress disorder (PTSD) and how it can manifest for a person with a bleeding disorder or a family member. We will discuss how PTSD can affect your personal and professional relationships and ways you can seek both medical and non-medical help.
Navigating Virtual School At Home
During COVID-19, many children are now figuring out how to learn online through virtual schooling. Many parents and caregivers are now tasked with balancing work, online school, and child care. This session will discuss strategies, tips, and stories of how to navigate the online school and virtual learning with a child who has a bleeding disorder.
Movement and Mobility
Throughout the different stages of living with a bleeding disorder, we can be or become immobile at one point or another. During this session, you will learn movement and meditation techniques that alleviate stress and anxiety that come along with a bleeding disorder.
Parent Partnership & Mental Health
As a parent or primary caregiver of a child with a bleeding disorder, it's easy to put all of your focus into managing your child's care. Especially during this time, it is important to nurture your relationship with your partner - and to make your mental and emotional health a priority. This session will impart some personal experiences, as well as strategies and tips on how to balance your roles in your partnership and designate time to nurture your mental health and well-being.
Learning to Let Go: Fostering Independence
Let’s face it, adolescence is a challenging time even under the best of circumstances. As parents of teens with hemophilia and an inhibitor, one of those biggest challenges, preparing to let go, can be especially difficult. As children grow into their teen years, parents undergo a transition of their own, from advocates and fierce protectors to ones willing, in fits and starts, to take a step back. In this webinar, a social worker will join a teenager, young adult and mom to discuss this evolution and techniques for engendering independence.
Is Hemophilia a Secret? Disclosure in the 21st Century
The issue of disclosure is not always as straightforward as it might seem. The question of when and how to talk about one's bleeding disorder can be complicated and will arise many times in a person’s life. Watch the online webinar as social worker Cathy Tiggs and two individuals affected by hemophilia and inhibitors discuss the social, personal and professional implications of disclosure in the digital age and social media.
Presenters/Panelists:
Getting Unstuck: Overcoming Roadblocks to Intimacy and Relationships
Intimacy and relationships can have special dynamics for people with bleeding disorders and for caregivers of a child with a bleeding disorder. This module explores ways to strengthen physical, emotional, social, intellectual and spiritual intimacy through targeted communication and behaviors to enhance relationships. It is ideal for those interested in attending individually or as a couple to learn tools for cultivating a rewarding, enjoyable connection with their partner.
Speakers:
Is Hemophilia a Secret? Disclosure in a World Filled with Technology
Whether within friendships, romantic relationships, at school or in the workplace, an adult with hemophilia will confront the question of disclosing their bleeding disorder status many times over. Join us to learn techniques that will help you negotiate this process in the age of digital and social media.
Transcription of "Is Hemophilia a Secret? Disclosure in a World Filled with Technology"
Skills for Coping with Anxiety and Depression
Life with a chronic condition can be challenging at times, adding stress to the lives of people with bleeding disorders and their caregivers. The Hemophilia Experiences, Results and Opportunities (HERO) study, conducted by Novo Nordisk, found that while many people experience anxiety when adapting to life with a bleeding disorder, this can be reduced when quality information, advice and support networks are available. Mental health and physical health are closely related, and this presentation will discuss how stress can affect life, how to know when life is out of balance, and what resou
A Moment of Reflection
This recorded session was a part of the 2020 virtual Rare Bleeding Disorders Conference. This mid-week boost will explain the practice of meditation, with reflective meditation exercises woven throughout the presentation.
Speaker: Jhon Velasco, MA, RYT300
Our Resilient Minds, Bodies and Souls: Empowerment Through Storytelling
*ASWB
Moderators:
Damia Dillard, LCSW
Social Worker, UC Davis Medical Center
Denise Lowery, LCSW
Social Worker, UC Davis Medical Center
Speaker:
Marijuana: Breaking it Down, the Good, the Bad, and the Consumption
*ASWB
Moderators:
Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania
Alfredo A. Narvaez, Jr., MSW, LMSW
Social Worker, Louisiana Comprehensive Hemophilia Center
Tulane University Medical Center
Speaker:
Khalid Namoos
Medical Fellow, UCLA David Geffen School of Medicine
By the end of this session, the participant should be better able to:
Prevalence of Depression and/or Anxiety in Children Seen at the Arizona HTC’
*ASWB
Moderators:
Amy Schadewald, MSW, LICSW, ACM
Clinical Social Worker, M Health Fairview Center for Bleeding and Clotting Disorders
Connie Thibodeaux, MSW, LCSW, BAC
Hemophilia Social Work Coordinator
Louisiana Center for Bleeding & Clotting Disorders
Tulane University School of Medicine / Deming Department of Medicine
Speaker:
Covid-19 and Provider Mental Health
*ASWB
Moderators:
Amanda Stahl, MSW, LICSW
Clinical Social Worker
Boston Hemophilia Center, Brigham and Women’s Hospital
Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center
Speaker:
Jeannie Aschkenasy, PhD
Psychologist
Rush Hemophilia and Thrombophilia Center
Rush University Medical Center
Ethics: Blurred Boundaries
*ASWB
Moderators:
Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania
Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center
Speaker:
Alana Brunner, LCPC, NCC, CCMHC
Mental Health Therapist
St. Luke’s Psychiatric Wellness
By the end of this session, the participant should be better able to: