SBAC Program Grows
In its sixth year, the NHF SBAC program provides support to 21 states that include over 30 NHF chapters, representing thousands of families with bleeding disorders across the USA.
In its sixth year, the NHF SBAC program provides support to 21 states that include over 30 NHF chapters, representing thousands of families with bleeding disorders across the USA.
The NHF State Based Advocacy Coalition (SBAC) program began in 2012 with five key states to respond to various advocacy challenges affecting access to care for the bleeding disorders community.
CDC, along with the Health Resources and Services Administration, the National Institutes of Health, Hemophilia of Georgia, and the American Society of Hematology, hosts the first National Conference on Blood Disorders in Public Health in Atlanta, GA.
NHF launches Hemophilia Walk program, which becomes Unite for Bleeding Disorders. The first year featured walks in five different cities.
Thanks to NHF and chapter advocates, March becomes "Hemophilia Awareness Month" in Illinois.
NHF partners with local HTCs to provide support to the bleeding disorders community in Puerto Rico after the island is devasted by Hurricanes Irma and Maria.
The Alaska chapter joins NHF.
The Hawaii chapter joins NHF.
The NYC Chapter joins NHF.
The New York City Hemophilia Chapter (NYCHC) was incorporated in and obtained its 501 (c)(3) status in 2008, and became a NHF chapter in 2009.
The Hemophilia Foundation of Greater Florida forms and joins NHF as a chapter.
In 1984, Hemophilia of Michigan is appointed the federal Regional Core Center for Michigan, Ohio, and Indiana HTCs.
In 1980, Hemophilia of Michigan works with state legislators to extend specialized healthcare coverage provided by Michigan’s Children’s Special Healthcare Services (CSHCS) to adults as well as children with bleeding disorders.
The Great Lakes Hemophilia Foundation becomes an NHF chapter. The chapter was founded in part by Dr. Jacob (Jay) Shanberge, the director of pathology and laboratory medicine at Mt. Sinai Hospital in Milwaukee.
NHF expands to 54 national chapters.
The Gateway Hemophilia Association (Missouri chapter) forms after being approached by NHF to start a local chapter for families with hemophilia. With the growing population and need for support, GHA is started.
NHF grows to 23 chapters nationwide.
The Indiana Chapter forms.
Hemophilia of Michigan forms.
Chapters form in Rochester and Chicago.