Federal Hemophilia Programs
Since 1974, Congress has authorized and funded hemophilia programs at the Centers for Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA). NHF advocates for support of these federal hemophilia programs that provide funding for research, surveillance, prevention and services for people with bleeding disorders:
- Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB) – With funding from HRSA, hemophilia treatment center (HTCs) provide critical, comprehensive multi-disciplinary services not typically covered by insurance, such as physical therapy assessments, social work and case management services.
- Centers for Disease Control and Prevention (CDC),National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders – The CDC Division of Blood Disorders provides funding for several programs including ones that support research, surveillance and prevention for bleeding and clotting disorders, including hemophilia. Funding also supports patient education and outreach for individuals with hemophilia and women with bleeding disorders, as well as an information clearinghouse on these disorders. CDC programs help to enhance public and scientific understanding of hemophilia and other bleeding disorders, which has resulted in the development and implementation of strategies to diagnose women with bleeding disorders, and prevent co-morbidities and secondary complications from hemophilia.
- MCHB National Hemophilia Program
- American Thrombosis and Hemostasis Network (ATHN)
- Blood Disorder Division Support Letter
- CDC Hemophilia Treatment Center (HTC)
- CDC National Center on Birth Defects and Developmental Disabilities Division of Blood Disorders
- CDC Data and Statistics
- CDC supported educational programs at NHF