Financial Considerations

The cost of treating an inhibitor can be very high. Bleeding Disorders treatment is already expensive, and treating an inhibitor can be even more costly. It’s important to acknowledge that new treatments are reducing the financial and social impact. But for some those treatments aren’t available or don’t work as well. Many insurance companies cover these medical expenses, but it depends on the treatment plan and the specific policies of the insurance.

It's important for individuals and health care providers to talk about the costs of inhibitor treatment and search for extra programs or resources that can help. If someone is being treated at a hospital, they should contact the finance or billing department to discuss the financial aspects of the treatment. These people can help figure out how much of the treatment is covered by insurance. In many cases, insurance only covers part of the cost.

Some hospitals and HTCs have social workers who can help patients understand what their insurance covers and what they are responsible for paying. The reimbursement for treatment can be different if it's done inpatient at a hospital or outpatient at a treatment facility. Social workers can also help people find local or national resources to aide with the costs. There may be financial assistance available through city or county social service agencies, but it may vary depending on where someone lives and their financial situation.

To learn more about financial health please visit NBDF's Steps for Living Website, specifically the section about Financial Health.


Social Concerns

Inhibitors may bring challenges for both the patient and their family. Bleeding Disorders are already tough, but having inhibitors makes it even harder. The struggles, both financially and emotionally, become more intense. Sometimes, families must travel far to get the right care at a hospital or HTC.

Inhibitors often develop in children, and it can affect them emotionally and socially at an early age. When kids become teenagers, they want to be independent and take risks, which can make it harder for them to follow their treatment plan. It's important for them to get guidance from health care providers and other professionals at the HTC.

To learn more about social considerations please visit NBDF's Steps for Living Website, specifically the section about Social Considerations.

Getting support from other patients and families who are going through similar experiences is very helpful. It can make dealing with the stress and anxiety of this treatment complication a bit easier. Please explore NBDF's Inhibitor Education page to discover more about educational and in-person learning experiences.

We also encourage you to check out NBDF's mental health resource list.