The National Hemophilia Foundation, the Coalition for Hemophilia B and the Hemophilia Federation of America would like to inform the bleeding disorders community that a new series of online surveys were recently launched as part of a study called B-HERO-S (Bridging Hemophilia Experiences Results and Opportunities into Solutions). The purpose of the Novo Nordisk-sponsored study is to better understand the psychosocial issues of individuals with hemophilia B, their parents and other caregivers. Investigators intend to use the data to learn more about this segment of the bleeding disorders community in the hopes ultimately of improving health management and enhancing quality of life.
B-HERO-S surveys, which take approximately 45-60 minutes to complete, were designed in collaboration with healthcare professionals, hemophilia B patients and caregivers, and patient organizations. Huron Consulting Group, a New York-based research company, will be administering the study and analyzing the results. None of the questions posed in the questionnaire is of a marketing nature and none relates to treatment products.
