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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Equity
      • Accomplishments
      • Financial Statements
      • NHF Media Newsroom
      • The Red Thread: NHF's 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • NHF Educational Programming
      • Own Your Path
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Conducted by NHF
      • Funded by NHF
      • Presented at Our Conference
      • Research Journal Club
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • What We’ve Learned So Far
    • National Research Blueprint
      • What is the National Research Blueprint?
      • Involvement from Across the Community
      • Building on the Blueprint
      • Research Priorities
      • State of the Science Research Summit
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NHF-Takeda Clinical Fellowship Program
      • NHF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
  • Community Resources
    • Request Information
      • Contact NHF
      • HANDI - NHF’s Information Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Make a Planned Gift
      • Create a Will
      • Donor Advised Funds
    • Fundraise for NHF
      • NHF GO
      • Run in a Marathon
      • 2022 United Airlines New York City Half Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Takeda Shoes
      • Red Tie Soiree
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • For Young Professionals
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Blood Safety
MSM Blood Donation Change Proposal
Answering Your Questions on the recent FDA blood donation policy revisions…
Mar 16, 2023
Medical
Tablet of pills and syrup medicine
Aminocaproic Acid Manufacturer Shuttered Though Not Expected to…
Mar 16, 2023
Medical
Guilt in Mothers of Children with Hemophilia Focus of New Study
Guilt in Mothers of Children with Hemophilia Focus of New Study
Mar 15, 2023
Press Releases
NHF announces publication of working group recommendations as part of the National Research Blueprint for Inherited Bleeding Disorders.
NHF announces…
Mar 15, 2023
NHF & Community
HANDI Team Reminder – Apply for 2022 Scholarships Now!
HANDI Team Reminder – Apply for 2023 Scholarships Now!
Mar 14, 2023
NHF & Community
Start the Conversation
Start the Conversation with The Fellow on Call
Mar 14, 2023
Peer-Reviewed Journal Summaries
Prophylactic Therapy for Glanzmann Thrombasthenia Moves Towards Clinical Trials
Summit Emphasizes Pharmacovigilance in the Inherited Bleeding…
Mar 13, 2023
Industry
Clinical Trial Gene Double Helix
BioMarin Announces FDA’s Extended Review of Investigational…
Mar 10, 2023
NHF & Community
Join the Conversation This #BleedingDisordersAwarenessMonth
Start the Conversation: Dr. Amy Dunn on Gene Therapy
Mar 9, 2023
NHF & Community
Join the Conversation - #BleedingDisordersAwarenessMonth
Start the Conversation: Gene Therapy – An Oasis or Mirage?
Mar 9, 2023
Medical
Gene Helix for Gene Therapy Image
New Medscape Activity to Help Institutions Offer Gene Therapy
Mar 1, 2023
Press Releases
Pathway to Cures Research
Venture Philanthropy Fund to Accelerate the…
Mar 1, 2023
Press Releases
mike recht
National Hemophilia Foundation Names Michael…
Mar 1, 2023
Industry
FDA Approval
uniQure Announces Published Trial Results for Approved Gene Therapy
Feb 27, 2023
Advocacy & Legislative
Washington D.C. - Capitol Building
NHF Public Policy February Monthly Update
Feb 24, 2023

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