Hemophilia Circle
Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017
"Christmas Disease"
Researchers in San Francisco, New York, and Oxford describe a new type of hemophilia, arising from a defect in what is now known as factor IX (9). Rosemary Biggs from Oxford, UK, named it Christmas disease, after the first patient, Stephen Christmas.
Women, Girls, and People with the Potential to Menstruate Summit
The foundation hosts an inaugural summit focused on supporting the female and female-identifying population in Atlanta.
Spanish Language Programming
In 2017, the foundation introduced the Guías Culturales program. Guías culturales, or cultural guides, are volunteers within the community who speak Spanish and have navigated care for themselves or family members.
Dental Manual
In partnership with Mt. Sinai hospital, the foundation publishes clinical findings on oral surgery and dental care in a manual series called Treatment on Hemophilia.
First Washington Days
The first Washington Days advocacy event is held in 1996 on Capitol Hill in Washington, D.C.
Hemophilia Awareness Month
In March 1986, President Reagan proclaims the month "Hemophilia Awareness Month" -- this celebratory awareness month will later become Bleeding Disorders Awareness Month.