NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
A Novel Anti-Tissue Factor Pathway Inhibitor Antibody, BAY 1093884, Prevents Bleeding in Hemophilia A Mice
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Assessment of motor proficiency in people with bleeding disorders using the Bruininks-Oseretsky Test of Motor Proficiency, Second Edition (BOT-2™)
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Kids B-LONG: Safety, Efficacy, and Pharmacokinetics of Long-Acting Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Previously Treated Children with Hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Building ‘Zoris in the Sand’ – Best Practice for Bleeding Disorder Capacity Building in the Underserved US Commonwealth of the Northern Mariana Islands
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Real-world dosing and patient characteristics of rFVIIIFc in hemophilia A patients
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Efficacy of a Recombinant Factor IX Investigational Product, IB1001 (trenonacog alfa) in Previously Treated Patients with Hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Swimming exercise ameliorates pain, swelling and bone quality in a blood-induced joint damage animal model
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Description and Management of Pain and Functional Impairment in US Adults With Hemophilia: Initial Observations From the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Pediatric Venous Thrombosis Associated With Staphylococcal Infections: A Single Institutional Experience
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Low Annualized Bleeding Rates in Phase 3 Studies of Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Subjects with Target Joints at Baseline
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Long-term safety and efficacy of recombinant factor IX Fc (rFIXFc) in adults and adolescents with severe hemophilia B: interim results of the B-YOND study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Development of a novel patient-centered outcome measure in hemophilia using Goal Attainment Scaling
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
BAY 81-8973: The Effects of Routine Prophylaxis on Total, Joint, and Spontaneous Bleeding in Adolescents, Adults, and Children With Severe Hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Don’t Push Your Luck! Educational Board (not Bored) Game for Families Living with Hemophilia
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Gingival Bleeding and Oral Hygiene in Women with von Willebrand Disease
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Home infusion/specialty pharmacy inhibitor management program leads to patient/provider collaboration to facilitate enhanced program and patient outcomes
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The Impact of Reduced Treatment Frequency: Qualitative Evaluation of Adherence and Outcomes in Chronic Disease Management
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
The Medical Home Neighbor: The Intermountain Hemophilia and Thrombosis Center’s Experience with Quality Improvement via the Children’s Health Improvement Collaborative Medical Home Demonstration Project in Utah
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
New insights from modeling FVIII Kinetics of Native vs. Extended Half-life FVIII Products - Comparing FVIII Coverage under Various Dosing Scenarios
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Systematic review of clinical trials results assessing health-related quality of life in hemophilia patients receiving prophylaxis
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies