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Inhibitor Education Summits

 

 

*COVID-19 Update: The health and safety of our attendees and partners is our priority. NHF will follow the guidelines provided by the CDC, WHO and local health officials. We are aware of the general concerns in the community about the COVID-19 outbreak and how this may impact attendees and speakers of the  National Inhibitor Summit originally scheduled for May. The May National Inhibitor Summit has been rescheduled for Friday November 20 – Sunday November 22, 2020 at Hilton Denver City Center. Programming will be the same at both October and November National Summits.

NHF will continue to monitor the rapidly changing situation regarding COVID-19 and provide regular updates to families as information from the CDC becomes available. Please note this matter is evolving and subject to change per CDC guidance, and we will keep you posted.

Thank you for your patience as we all navigate this ever-changing situation. Our priority is and will always be to ensure we can provide the Inhibitor Summit community with quality education while maintaining the safety and health of the bleeding disorders community.

 

SUMMARY

The Inhibitor Summits are weekend-long, comprehensive educational programs for people with hemophilia A or B with inhibitors and their support network engaged in their day-to-day care. The Summits are a place for the inhibitor community to find strength. We want you to be empowered to face the challenges of living with an inhibitor. 

NHF hosts two national Inhibitor Summits each year. You may apply you and your family for only one Inhibitor Summit. You may not change summit dates once you have applied, so please choose the dates carefully. 

 

OVERVIEW OF INHIBTOR SUMMITS

  • A day and a half of educational sessions led by experts in hematology, healthcare, and other related fields.
  • New programming just for teens, planned by teen attendees
  • A childcare program for children ages 0-12 years will be provided during the meeting, which will include new and more in-depth educational sessions for older children
  • Translation will not be provided at the National Inhibitor Summits.
  • NHF hosts an Inhibitor Summit entirely in Spanish called Viviendo con Inhibidores. For additional information on Viviendo con Inhibidores please visit the program page here.

 

WHO’S ELIGIBLE TO APPLY

The Inhibitor Summits are open to people with hemophilia A or B with an active inhibitor or an inhibitor that has been tolerized. Currently, we are not able to host folks with rare factor deficiencies or von Willebrand disease with an Inhibitor.

It’s NHF’s goal to provide quality inhibitor education to as many eligible families as possible by hosting the Inhibitor Summits. In doing so, we are also conscious of the costs associated with putting on such a unique program and are always trying to create systems to allow for even more families in need to attend. Feedback from past participants as well as the National Steering Committee helped shape the application guidelines.  

With that in mind, we encourage participants to think critically about who they include in their application to attend, only including people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions.

Please read the detailed Application Guidelines below. Please note, if you are not within the guidelines, your application will be denied via email.

 

Applications are open!

Friday, May 29 – Sunday, May 31, 2020: Denver, CO – Summit postponed to November 20-22, 2020.

Friday, October 16 – Sunday, October 18, 2020: Denver, CO – Applications are open. Applications close July 17th.

Friday, November 20 – Sunday, November 22, 2020: Denver, CO Applications are open. Applications close July 17th.

 

Note: All families who applied for the May Inhibitor Summit have been contacted and have received notification on which Summit they will be attending. If you applied for the May Inhibitor Summit and are unsure on which Summit you are confirmed to attend, please contact inhibitorsummits@hemophilia.org

 

  • I’d like to arrive early or extend my trip.
    Due to the extenuating circumstances with COVID-19, trip extensions will no longer be allowed. ALL families must travel on the approved travel dates. We apologize for any inconvenience.
  • Is Vivendo con Inhibidores still happening?
    Viviendo con Inhibidores is still taking place Friday October 16 – Sunday October 18, 2020 at Hilton Denver City Center in Denver, Colorado. Applications will open second week of April._
  • When do applications close for the November National Inhibitor Summit? When will I find out if I’ve been accepted to attend?
    The November National Inhibitor Summit applications will close Friday July 17, 2020. New applicants will find out whether they have been accepted to attend to the November Summit no later than Friday July 31, 2020.
  • I applied for the October National Inhibitor Summit. When can I expect to hear back?
    The October National Inhibitor Summit applications will close Friday July 17, 2020. Applicants will find out whether they have been accepted to attend no later than Friday July 31, 2020.
  • I applied, but no longer can attend the Summits. What should I do?
    We understand. Please reach out to inhibitorsummits@hemophilia.org as soon as possible to let us know, your first and last name, which Summit you were attending, and first & last name of your additional attendees. We want to ensure we can provide attendance to as many families as possible. We do hope to see you next year!
  • I’m not within the Inhibitor Summit Application Guidelines and would like to pay my own way.
    Due to the extenuating circumstances with COVID-19, the pay your own way option will no longer be allowed. We apologize for any inconvenience.

 

Watch this video to see what the Inhibitor Summits are all about!

If you’re interested in learning more about our Spanish-language Inhibitor Summit, Viviendo con Inhibidores, please visit the program page.

 

Please note each affected person and their family is permitted to apply for one summit per year; either the Spring National Summit, Fall National Summit or Vivendo con Inhibidores. No exceptions will be made. Este año, las personas solo pueden aplicar para una de las tres cumbres este año – Inhibidor Naticional en May, Inhibidor Nacional en octubre o Vivendo con Inhibidores en octubre. La aplicación por Viviendo con Inhibidores de la cumbre se abrirá pronto.

 

All attendees are required to attend all sessions. If someone in your family does not attend each session, then you and your family will not be invited back to future Inhibitor Summits. If you have any questions, please call 1.877.560.5833

 

Note: The Inhibitor Summits are for U.S. residents only. If you live outside of the U.S., we won't be able to accept your application at this time.