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Inhibitor Education Summits

 

 

*COVID-19 Update: The health and safety of our attendees, speakers and partners is our priority. Due to the COVID- 19 pandemic, NHF has decided to host the National Inhibitor Summits virtually. By creating a virtual environment, we will make the experience consistent with top – level education you are used to receiving from NHF. Please continue to check this page further updates.

SUMMARY

The Inhibitor Summits are weekend-long, comprehensive educational programs for people with hemophilia A or B with inhibitors and their support network engaged in their day-to-day care. The Summits are a place for the inhibitor community to find strength. We want you to be empowered to face the challenges of living with an inhibitor. 

NHF will have one virtual National Inhibitor Summit and one Viviendo con Inhibidores in 2020. Please continue to check this page for registration links and an updated overview of the virtual program.*

OVERVIEW OF INHIBTOR SUMMITS

  • Four half- day experience of educational sessions led by experts in hematology, healthcare, and other related fields.
  • Programming just for teens, planned by teen attendees
  • Programming just for kids ages 0-12 years will be provided during the meeting
  • Programming is in English at the National Inhibitor Summit.
  • NHF hosts an Inhibitor Summit entirely in Spanish called Viviendo con Inhibidores. For additional information on the virtual Viviendo con Inhibidores please visit the program page here.

 

WHO’S THE CONFERENCE FOR:

The Inhibitor Summit programming is geared towards people with hemophilia A or B with an active inhibitor or an inhibitor that has been tolerized. It’s NHF’s goal to provide quality inhibitor education to as many eligible families as possible by hosting the Inhibitor Summits.

HOW TO REGISTER:

Registration will open soon for the Virtual National Inhibitor Summit!

 Watch this video to see what the Inhibitor Summits are all about!

If you’re interested in learning more about our Spanish-language Inhibitor Summit, Viviendo con Inhibidores, please visit the program page.

Please note each affected person and their family is permitted to register for both virtual conferences, National Inhibitor Summit and Viviendo con Inhibidores, if you choose.

Note: The virtual Inhibitor Summits and Viviendo con Inhibidores are open to U.S. and international attendees.

 

FREQUENTLY ASKED QUESTIONS: 

Is the Inhibitor Summits still happening? I applied for the National Inhibitor Summits, what happens to my application now that the conference is virtual?

The Inhibitor Summits will not take place as in person meeting on the original scheduled dates of Oct 16 – 18 and Nov 20 – Nov 22, 2020.  NHF has had to make the difficult decision to take the meeting virtual. NHF will have one virtual National Inhibitor Summit and one Viviendo con Inhibidores in 2020.  If you applied for the in-person National Inhibitor Summits you will be contacted by an NHF Staff member. If you applied and have not heard back, please contact inhibitorsummits@hemophilia.org

When is the virtual National Inhibitor Summit?

The date of the virtual Inhibitor National Summit will be announced in the coming weeks. Please look back to this page in the next few weeks.

Who is eligible to attend the virtual National Inhibitor Summit?

Any individuals with an inhibitor and family members are invited to attend the virtual Inhibitor National Summit. This conference will have content specific to individuals affected by hemophilia A or B with an active inhibitor or an inhibitor that has been tolerized, their families and support system.

Do you have to pay to attend the virtual National Inhibitor Summit? Do I need to register to attend?

No, you do not have to pay for the virtual conference. However, you must register for the virtual conference. You must register for the virtual conference even if you submitted a registration for the in-person conference. Registration links will be made available soon.

My question isn’t listed above. Who should I reach out to?

For additional questions please reach out to inhibitorsummits@hemophilia.org