Meet our National Steering Committee
Inhibitor Education Summits
The Inhibitor Summits are weekend-long, comprehensive educational programs for people with hemophilia A or B with inhibitors and their support network engaged in their day-to-day care. The Summits are a place for the inhibitor community to find strength. We want you to be empowered to face the challenges of living with an inhibitor.
NHF hosts two national Inhibitor Summits each year. You may apply you and your family for only one Inhibitor Summit. You may not change summit dates once you have applied, so please choose the dates carefully.
OVERVIEW OF INHIBTOR SUMMITS
- A day and a half of educational sessions led by experts in hematology, healthcare, and other related fields.
- New programming just for teens, planned by teen attendees
- A childcare program for children ages 0-12 years will be provided during the meeting, which will include new and more in-depth educational sessions for older children
- Translation will not be provided at the National Inhibitor Summits.
- NHF hosts an Inhibitor Summit entirely in Spanish called Viviendo con Inhibidores. For additional information on Viviendo con Inhibidores please visit the program page here.
WHO’S ELIGIBLE TO APPLY
The Inhibitor Summits are open to people with hemophilia A or B with an active inhibitor or an inhibitor that has been tolerized. Currently, we are not able to host folks with rare factor deficiencies or von Willebrand disease with an Inhibitor.
It’s NHF’s goal to provide quality inhibitor education to as many eligible families as possible by hosting the Inhibitor Summits. In doing so, we are also conscious of the costs associated with putting on such a unique program and are always trying to create systems to allow for even more families in need to attend. Feedback from past participants as well as the National Steering Committee helped shape the application guidelines.
With that in mind, we encourage participants to think critically about who they include in their application to attend, only including people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions.
Please read the detailed Application Guidelines below. Please note, if you are not within the guidelines, your application will be denied via email.
APPLICATIONS ARE CLOSED MOMETARILY. PLEASE REVISIT THE PAGE AFTER April 6TH.
Friday, May 29 – Sunday, May 31, 2020: Denver, CO – Applications are closed. Summit postponed to November 20-22, 2020.
Friday, October 16 – Sunday, October 18, 2020: Denver, CO – Applications are closed momentarily.
Friday, November 20 – Sunday, November 22, 2020: Denver, CO – Applications are closed momentarily.
The health and safety of our attendees and partners is our priority. NHF will follow the guidelines provided by the CDC, WHO and local health officials. We are aware of the general concerns in the community about the COVID-19 outbreak and how this may impact attendees and speakers of the National Inhibitor Summit originally scheduled for May. The May National Inhibitor Summit has been rescheduled for Friday November 20 – Sunday November 22, 2020 at Hilton Denver City Center. Programming will be the same at both October and November National Summits.
NHF will continue to monitor the rapidly changing situation regarding COVID-19 and provide regular updates to families as information from the CDC becomes available. Please note this matter is evolving and subject to change per CDC guidance, and we will keep you posted.
Thank you for your patience as we all navigate this ever-changing situation. Our priority is and will always be to ensure we can provide the Inhibitor Summit community with quality education while maintaining the safety and health of the bleeding disorders community.
- I applied for the May Summit, do I have to re-apply to participate in the November National Inhibitor Summit?
The rescheduled date of the May Summit is Friday November 20- Sunday November 22, 2020. You do not have to re-submit an application for the November National Inhibitor Summit. A representative from NHF’s Education team will reach out to the main attendee via email regarding your interest in moving your application to the November Summit.
- I applied for the May National Inhibitor Summit, but the November dates do not work. Can I attend the October National Inhibitor Summit instead?
If you are interested in attending the October National Inhibitor Summit, please do not re-apply for the Summit. A representative from NHF’s Education team will reach out to the main attendee directly regarding your interest in attending the October Summit.
- Is Vivendo con Inhibidores still happening?
Viviendo con Inhibidores is still taking place Friday October 16 – Sunday October 18, 2020 at Hilton Denver City Center in Denver, Colorado. Applications will open second week of April._
- When do applications close for the November National Inhibitor Summit? When will I find out if I’ve been accepted to attend?
The November National Inhibitor Summit applications will close Friday July 17, 2020. New applicants will find out whether they have been accepted to attend to the November Summit no later than Friday July 31, 2020.
- I applied, but no longer can attend the Summits. What should I do?
We understand. Please reach out to email@example.com as soon as possible to let us know, your first and last name, which Summit you were attending, and first & last name of your additional attendees. We want to ensure we can provide attendance to as many families as possible. We do hope to see you next year!
If you’re interested in learning more about our Spanish-language Inhibitor Summit, Viviendo con Inhibidores, please visit the program page.
Please note each affected person and their family is permitted to apply for one summit per year; either the Spring National Summit, Fall National Summit or Vivendo con Inhibidores. No exceptions will be made. Este año, las personas solo pueden aplicar para una de las tres cumbres este año – Inhibidor Naticional en May, Inhibidor Nacional en octubre o Vivendo con Inhibidores en octubre. La aplicación por Viviendo con Inhibidores de la cumbre se abrirá pronto.
All attendees are required to attend all sessions. If someone in your family does not attend each session, then you and your family will not be invited back to future Inhibitor Summits. If you have any questions, please call 1.877.560.5833
Note: The Inhibitor Summits are for U.S. residents only. If you live outside of the U.S., we won't be able to accept your application at this time.