Meet our National Steering Committee
Inhibitor Education Summits
The Inhibitor Summits are weekend-long, comprehensive educational programs for people with hemophilia A or B with inhibitors and their support network engaged in their day-to-day care. The Summits are a place for the inhibitor community to find strength. We want you to be empowered to face the challenges of living with an inhibitor.
NHF hosts two national Inhibitor Summits each year. You may apply you and your family for only one Inhibitor Summit. You may not change summit dates once you have applied, so please choose the dates carefully.
OVERVIEW OF INHIBTOR SUMMITS
- A day and a half of educational sessions led by experts in hematology, healthcare, and other related fields.
- New programming just for teens, planned by teen attendees
- A childcare program for children ages 0-12 years will be provided during the meeting, which will include new and more in-depth educational sessions for older children
- Translation will not be provided at the National Inhibitor Summits.
- NHF hosts an Inhibitor Summit entirely in Spanish called Viviendo con Inhibidores. For additional information on Viviendo con Inhibidores please visit the program page here.
WHO’S ELIGIBLE TO APPLY
The Inhibitor Summits are open to people with hemophilia A or B with an active inhibitor or an inhibitor that has been tolerized. Currently, we are not able to host folks with rare factor deficiencies or von Willebrand disease with an Inhibitor.
It’s NHF’s goal to provide quality inhibitor education to as many eligible families as possible by hosting the Inhibitor Summits. In doing so, we are also conscious of the costs associated with putting on such a unique program and are always trying to create systems to allow for even more families in need to attend. Feedback from past participants as well as the National Steering Committee helped shape the application guidelines.
With that in mind, we encourage participants to think critically about who they include in their application to attend, only including people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions.
Please read the detailed Application Guidelines below. Please note, if you are not within the guidelines, your application will be denied via email.
TO APPLY, CLICK ON THE INHIBITOR SUMMIT DATES YOU PREFER TO ATTEND:
Friday, May 29-Sunday, May 31, 2020: Denver, CO – Applications open February 7, 2020. Applications close February 28, 2020.
Friday, October 16-Sunday October 18, 2020: Denver, CO – Applications open February 7, 2020. Applications close July 17, 2020.
If you’re interested in learning more about our Spanish-language Inhibitor Summit, Viviendo con Inhibidores, please visit the program page.
Please note each affected person and their family is permitted to apply for one summit per year; either the Spring National Summit, Fall National Summit or Vivendo con Inhibidores. No exceptions will be made. Este año, las personas solo pueden aplicar para una de las tres cumbres este año – Inhibidor Naticional en May, Inhibidor Nacional en octubre o Vivendo con Inhibidores en octubre. La aplicación por Viviendo con Inhibidores de la cumbre se abrirá pronto.
All attendees are required to attend all sessions. If someone in your family does not attend each session, then you and your family will not be invited back to future Inhibitor Summits. If you have any questions, please call 1.877.560.5833
Note: The Inhibitor Summits are for U.S. residents only. If you live outside of the U.S., we won't be able to accept your application at this time.