Spanish Language Programming
In 2017, the foundation introduced the Guías Culturales program. Guías culturales, or cultural guides, are volunteers within the community who speak Spanish and have navigated care for themselves or family members.
Guilt in Mothers of Children with Hemophilia Focus of New Study
Guilt in Mothers of Children with Hemophilia Focus of New Study
Study authors looked at potential contributing factors to guilt, coping strategies, and perception of children's life satisfaction.
NHF announces publication of working group recommendations as part of the National Research Blueprint for Inherited Bleeding Disorders
NHF announces publication of working group recommendations as part of the National Research Blueprint for Inherited Bleeding Disorders
Papers in Expert Review of Hematology highlight key issues and opportunities agreed upon by community leaders during the State of the Science Research Summit
HANDI Team Reminder – Apply for 2023 Scholarships Now!
HANDI Team Reminder – Apply for 2023 Scholarships Now!
Some of these applications have fast-approaching deadlines so access the list today and apply!
Start the Conversation with The Fellow on Call
Start the Conversation with The Fellow on Call
This Bleeding Disorders Awareness Month, hematologists Ronak Mistry, DO and Dan Hausrath, MD start a conversation around their experiences being early career physicians, and launching a podcast. Watch their video and read a transcript.
Summit Emphasizes Pharmacovigilance in the Inherited Bleeding Disorders Community
Summit Emphasizes Pharmacovigilance in the Inherited Bleeding Disorders Community
The NHF/HFA Safety Summit yielded a series of recommendations related to product safety in the inherited bleeding disorders community.
BioMarin Announces FDA’s Extended Review of Investigational Hemophilia Gene Therapy
BioMarin Announces FDA’s Extended Review of Investigational Hemophilia Gene Therapy
ROCTAVIAN™ is currently in multiple ongoing clinical trials to observe its safety and efficacy in adult patients with severe hemophilia A.
Start the Conversation: Dr. Amy Dunn on Gene Therapy
Start the Conversation: Dr. Amy Dunn on Gene Therapy
NHF CEO Dr. Len Valentino invites community members and medical professionals to join the conversation. Dr. Amy Dunn talks about the latest developments in gene therapy for hemophilia and NHF's role in finding cures for inheritable blood disorders.
Dental Manual
In partnership with Mt. Sinai hospital, the foundation publishes clinical findings on oral surgery and dental care in a manual series called Treatment on Hemophilia.
Start the Conversation: Gene Therapy – An Oasis or Mirage?
Start the Conversation: Gene Therapy – An Oasis or Mirage?
NHF CEO Dr. Len Valentino invites community members and medical professionals to join the conversation. Ray Stanhope explores challenges with gene therapy for hemophilia B, including high costs and eligibility restrictions.