NHF's First Female President
NHF elects its first female board president, Katherine Muir.
NHF elects its first female board president, Katherine Muir.
NHF launches the "It's Time for a Cure!" campaign.
NHF forms a "Women with Bleeding Disorders Task Force" for the first time.
With the guidance of NHF advocates, Rep. Porter J. Goss of Florida introduces the H.R.1023 - Ricky Ray Hemophilia Relief Fund Act of 1998.
The first factor IX (9) product granted FDA approval.
The development of a bypassing agent in 1997 offers inhibitor patients an alternative product to help stop bleeds and joint damage.
NHF's magazine, HemAware, debuts its inaugural issue.
The Hemophilia Foundation of Greater Florida forms and joins NHF as a chapter.
In 1996, the National Hemophilia Foundation initiated an annual Gene Therapy and Novel Technologies Workshop to bring together immunologists, clinicians, and researchers in gene therapy. Over two decades later, the Gene Therapy Workshop still continues today.
Val Bias, community advocate and future NHF CEO, testifies before Congress to amend the Employee Retirement Income Security Act of 1974, hoping to increase the purchasing power of individuals and employers, to protect employees whose health benefits are provided through multiple employer welfare arrangements, and to provide increased security of health care benefits.