The Passing of Ryan White
Ryan White, a hemophilia and AIDs advocate, passes away from complications due to HIV.
Ryan White, a hemophilia and AIDs advocate, passes away from complications due to HIV.
The Human Genome Project begins.
W. French Anderson and his colleagues at the NIH perform the first approved gene therapy procedure on a four-year-old girl born with severe combined immunodeficiency.
An article in the Journal of Biological Chemistry announces that the structure of the gene for human von Willebrand factor is succesfully cloned for the first time.
NHF launches the Women’s Outreach Network of NHF (WONN) and the Men’s Advocacy Network of NHF (MANN).
The HCV is first identified; it soon becomes clear that an even higher proportion of people with hemophilia have been exposed to this virus, which can result in chronic liver disease.
NHF recognized that over 60% of America’s 20,000 people with hemophilia had contracted HIV.
Robert Lee Henry, NHF's founder, passes away.
Isolation of the genes controlling factor VII and von Willebrand's factor production. (Factor VII deficiency results in a rare form of hemophilia, but also may have broad applications in treating more common forms of hemophilia.)
Ryan White, a hemophilia patient, is diagnosed with AIDs after a blood transfusion at age 13.